Factors Influencing Consent for Electronic Data Linkage in Urban Latinos

Stud Health Technol Inform. 2015:216:984.

Abstract

Within the context of patient participation in a Learning Health System, this study examined consent rates and factors associated with consent for linking survey data with electronic clinical data in a sample of 2,271 Latinos. Consent rate was 96.3%. Government insurance status and health literacy significantly influenced the odds of consent.

Publication types

  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Confidentiality / ethics*
  • Electronic Health Records / ethics
  • Electronic Health Records / statistics & numerical data
  • Hispanic or Latino / statistics & numerical data*
  • Humans
  • Information Storage and Retrieval / ethics*
  • Informed Consent* / statistics & numerical data
  • New York City / epidemiology
  • Specimen Handling / ethics*
  • Specimen Handling / statistics & numerical data
  • Surveys and Questionnaires