Ethical, strategic and meaningful involvement of women living with HIV starts at the beginning

Angelina Namiba; Luisa Orza; Susan Bewley; E Tyler Crone; Marijo Vazquez; Alice Welbourn

Ethical, strategic and meaningful involvement of women living with HIV starts at the beginning

J Virus Erad. 2016 Apr 1;2(2):110-1.

Authors

Angelina Namiba¹, Luisa Orza², Susan Bewley³, E Tyler Crone⁴, Marijo Vazquez⁵, Alice Welbourn⁵

Affiliations

¹ Independent Consultant , London , UK.
² Athena Network, London, UK; Salamander Trust, LondonUK.
³ Women's Health Academic Centre , King's College London , London , UK.
⁴ Athena Network , London , UK.
⁵ Salamander Trust , London UK.

PMID: 27482445
PMCID: PMC4965241

Abstract

End-user involvement in HIV guidelines development is often little, late or absent. Other disciplines have long advocated 'handing over the stick' (i.e. power and control), as both ethical and strategic. Women HIV activists have called this respectful engagement with, and learning from, communities 'MIWA' (meaningful involvement of women living with HIV and AIDS).

Keywords: HIV; World Health Organization (WHO); ethics; global consultation; meaningful involvement of women living with HIV and AIDS (MIWA); participation; participatory research; sexual and reproductive health; women's rights.