Is "end of life" a special case? Connecting Q with survey methods to measure societal support for views on the value of life-extending treatments

Health Econ. 2018 May;27(5):819-831. doi: 10.1002/hec.3640. Epub 2018 Jan 19.

Abstract

Preference elicitation studies reporting societal views on the relative value of end-of-life treatments have produced equivocal results. This paper presents an alternative method, combining Q methodology and survey techniques (Q2S) to determine the distribution of 3 viewpoints on the relative value of end-of-life treatments identified in a previous, published, phase of this work. These were Viewpoint 1, "A population perspective: value for money, no special cases"; Viewpoint 2, "Life is precious: valuing life-extension and patient choice"; and Viewpoint 3, "Valuing wider benefits and opportunity cost: the quality of life and death." A Q2S survey of 4,902 respondents across the United Kingdom measured agreement with these viewpoints; 37% most agreed with Viewpoint 1, 49% with Viewpoint 2, and 9% with Viewpoint 3. Regression analysis showed associations of viewpoints with gender, level of education, religion, voting preferences, and satisfaction with the NHS. The Q2S approach provides a promising means to investigate how in-depth views and opinions are represented in the wider population. As demonstrated in this study, there is often more than 1 viewpoint on a topic and methods that seek to estimate that averages may not provide the best guidance for societal decision-making.

Keywords: Q survey; end of life; resource allocation; societal views.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Attitude to Health
  • Female
  • Humans
  • Life Expectancy / trends*
  • Male
  • Middle Aged
  • Public Opinion
  • Q-Sort
  • Quality of Life / psychology
  • Resource Allocation / economics*
  • Surveys and Questionnaires
  • Terminal Care / statistics & numerical data*
  • United Kingdom
  • Value of Life / economics*
  • Young Adult