Development of an Instrument to Assess Stroke Caregivers' Readiness for the Transition Home

Rehabil Nurs. 2020 Sep/Oct;45(5):287-298. doi: 10.1097/rnj.0000000000000204.

Abstract

Purpose: The study purpose was to develop a measure to assess stroke caregivers' commitment and capacity to assume the caregiving role prior to discharge.

Design: Participants were caregivers of stroke survivors in an inpatient rehabilitation facility.

Methods: A sequential, multimethod approach, which included item generation from qualitative data, review of items by expert clinicians, cognitive interviews to determine response format (n = 22), and item clarity (n = 20), and an analysis of pilot data were utilized.

Findings: Cognitive interviewing provided information to improve item clarity.

Conclusion: This instrument development approach resulted in the Preparedness Assessment for the Transition Home After Stroke (PATH-s), a 26-item self-report instrument. The PATH-s represents the domains of the Model of Caregiver Readiness, upon which the instrument was developed.

Clinical relevance: The PATH-s, once further validated, may guide healthcare providers in the development of tailored care plans to address identified gaps and better prepare caregivers for the transition home.

MeSH terms

  • Aged
  • Caregivers / psychology*
  • Caregivers / statistics & numerical data
  • Female
  • Humans
  • Male
  • Middle Aged
  • Patient Transfer / methods
  • Patient Transfer / standards
  • Patient Transfer / statistics & numerical data
  • Psychometrics / instrumentation
  • Psychometrics / methods
  • Psychometrics / standards*
  • Reproducibility of Results
  • Stroke / complications
  • Stroke / psychology
  • Stroke / therapy*
  • Stroke Rehabilitation / methods
  • Stroke Rehabilitation / psychology
  • Transitional Care / standards*
  • Transitional Care / statistics & numerical data