1 Division of Pediatric Palliative Care, Children's Hospital and Medical Center, Omaha, Nebraska, USA.
2 Pediatric Oncology Branch, National Cancer Institute, Center for Cancer Research, National Institutes of Health, Bethesda, Maryland, USA.
3 Division of Oncology, Children's National Medical Center, Washington, DC, USA.
4 College of Nursing, Wayne State University, Detroit, Michigan, USA.
5 Pediatric Critical Care and Pediatric Ethics Program, Division of Pediatric Critical Care Medicine, Department of Pediatrics, Children's National Health System, Washington, DC, USA.
6 Department of Family and Community Health, University of Maryland School of Nursing, Baltimore, Maryland, USA.
7 Children's National Hospital/Center for Translational Science and George Washington School of Medicine and Health Sciences, Washington, DC, USA.