Young people with long-term health challenges experiences in transition to adulthood: A qualitative metasynthesis

J Adv Nurs. 2021 Feb;77(2):595-607. doi: 10.1111/jan.14641. Epub 2020 Nov 27.

Abstract

Aims: The aim of this study was to describe the experiences of the transition to adulthood for young people with long-term health challenges.

Design: The metasynthesis approach was based on the guidelines by Sandelowski and Barroso for synthesizing qualitative research.

Data sources: Seven electronic databases: CINAHL, Medline, Embase, PsycINFO, Web of Science, Scopus, and SocIndex were searched on 6-10 February 2020.

Review methods: Studies were critically appraised using the Joanna Briggs critical appraisal tool. Qualitative data were extracted, meta-summarised, then meta-synthesized.

Findings: Nineteen qualitative studies were included in this review. Six themes illustrated experiences in the transition to adulthood: wishing for an 'ordinary' life, significance of close network, working towards independence, in need of systemic resources and services, psychosocial challenges and keeping a positive attitude.

Conclusion: Young people with long-term health challenges wished for as 'ordinary' a life as possible in the future. In the transition to adulthood, they gradually gained more competence in self-management skills and knowledge and strived to become more independent. By having a positive attitude and using other coping strategies, young people can work on some of the difficulties they experience in this phase. However, to achieve and maintain independence young people with long-term health challenges are dependent on the support of a close network and systemic support and services.

Impact: The findings highlight the need to help alleviate the fears and worries of young people with long-term health challenges and create opportunities for successful transition to adulthood by increased awareness and interventions from policy-makers and professionals in the health and social system.

目的: 本研究旨在阐述面临长期健康挑战的年轻人向成年过渡的经历。 设计: 综合集成方法基于Sandelowski和Barroso关于综合定性研究的指导方针。 数据来源: 搜索七个电子数据库: CINAHL、Medline、Embase、PsycINFO、科学网、Scopus 以及SocIndex2020年2月6日至10日期间的数据。 评估方法: 采用Joanna Briggs批判性评估工具对研究进行了批判性评估。提取定性数据,进行元汇总,然后进行元合成。 发现: 本评估中包括19项定性研究。向成年过渡的经历共有六个主题:希望过上“平凡”的生活、建立紧密的网络、致力于独立、需要系统的资源和服务、社会心理挑战以及保持积极的态度。 结论: 有长期健康挑战的年轻人希望将来能过上“平凡”的生活。在过渡到成年后,他们逐渐获得了自我管理技能和知识方面的能力,并努力变得更加独立。通过采取积极的态度并使用其他应对策略,年轻人可以解决他们在此阶段遇到的一些困难。但是,要实现并保持独立性,面临长期健康挑战的年轻人需要依赖紧密网络的支持以及系统的支持和服务。 影响: 研究结果强调,有必要通过增强政策制定者和专业人员对卫生和社会系统的认识和干预,来减轻面临长期健康挑战青年的恐惧和忧虑,并为成功过渡到成年创造机会。.

Keywords: emerging adulthood; long-term health challenges; long-term illness; nursing; systematic metasynthesis; transition; young adults.

Publication types

  • Review

MeSH terms

  • Adaptation, Psychological*
  • Adolescent
  • Adult
  • Humans
  • Qualitative Research
  • Transition to Adult Care*