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P047 The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient Reported Outcome Measure for Clinical Trials.
Seabury J, Weinstein J, Rosero S, Varma A, Wagner E, Zizzi C, Dilek N, McDermott M, Kaat A, Saubermann L, Temple L, Rogoff S, Heatwole C. Seabury J, et al. Among authors: dilek n. Am J Gastroenterol. 2021 Dec 1;116(Suppl 1):S12. doi: 10.14309/01.ajg.0000798788.08354.11. Am J Gastroenterol. 2021. PMID: 37461965
The amyotrophic lateral sclerosis-health index (ALS-HI): development and evaluation of a novel outcome measure.
Varma A, Weinstein J, Seabury J, Rosero S, Zizzi C, Alexandrou D, Wagner E, Dilek N, Heatwole J, Wuu J, Caress J, Bedlack R, Granit V, Statland J, Mehta P, Benatar M, Kaat A, Heatwole C. Varma A, et al. Among authors: dilek n. Amyotroph Lateral Scler Frontotemporal Degener. 2023 Aug;24(5-6):514-522. doi: 10.1080/21678421.2023.2204871. Epub 2023 May 15. Amyotroph Lateral Scler Frontotemporal Degener. 2023. PMID: 37190795
Friedreich's Ataxia-Health Index: Development and Validation of a Novel Disease-Specific Patient-Reported Outcome Measure.
Seabury J, Rosero S, Varma A, Weinstein J, Engebrecht C, Dilek N, Heatwole J, Alexandrou D, Cohen B, Larkindale J, Lynch DR, Park C, Subramony SH, Wagner E, Walther S, Wells M, Zizzi C, Heatwole C. Seabury J, et al. Among authors: dilek n. Neurol Clin Pract. 2023 Oct;13(5):e200180. doi: 10.1212/CPJ.0000000000200180. Epub 2023 Aug 28. Neurol Clin Pract. 2023. PMID: 37646046
The Crohn's Disease-Health Index: Development and Evaluation of a Novel Outcome Measure.
Varma A, Weinstein J, Seabury J, Rosero S, Wagner E, Zizzi C, Kaat A, Luebbe E, Dilek N, Heatwole J, Saubermann L, Temple L, Rogoff S, Heatwole C. Varma A, et al. Among authors: dilek n. J Clin Gastroenterol. 2024 Jan 26. doi: 10.1097/MCG.0000000000001976. Online ahead of print. J Clin Gastroenterol. 2024. PMID: 38277500
Patient-Reported Impact of Symptoms in Friedreich Ataxia.
Seabury J, Alexandrou D, Dilek N, Cohen B, Heatwole J, Larkindale J, Lynch DR, Park C, Rosero S, Subramony SH, Varma A, Wagner E, Walther S, Weinstein J, Wells M, Zizzi C, Heatwole C. Seabury J, et al. Among authors: dilek n. Neurology. 2023 Feb 21;100(8):e808-e821. doi: 10.1212/WNL.0000000000201598. Epub 2022 Nov 28. Neurology. 2023. PMID: 36443012 Free PMC article.
Lower limb muscle MRI fat fraction is a responsive outcome measure in CMT X1, 1B and 2A.
Doherty CM, Morrow JM, Zuccarino R, Howard P, Wastling S, Pipis M, Zafeiropoulos N, Stephens KJ, Grider T, Feely SME, Nopoulous P, Skorupinska M, Milev E, Nicolaisen E, Dudzeic M, McDowell A, Dilek N, Muntoni F, Rossor AM, Shah S, Laura M, Yousry TA, Thedens D, Thornton J, Shy ME, Reilly MM. Doherty CM, et al. Among authors: dilek n. Ann Clin Transl Neurol. 2024 Mar;11(3):607-617. doi: 10.1002/acn3.51979. Epub 2024 Jan 3. Ann Clin Transl Neurol. 2024. PMID: 38173284 Free PMC article.
Patient-Reported Impact of Symptoms in Fibromyalgia (PRISM-FM).
Weinstein J, Rosero S, Seabury J, Varma A, Engebrecht C, Khosa S, Heatwole J, Dilek N, Kaat A, Matallana LK, Heatwole C. Weinstein J, et al. Among authors: dilek n. J Rheumatol. 2024 Jun 1;51(6):628-636. doi: 10.3899/jrheum.2023-0698. J Rheumatol. 2024. PMID: 38224983
[No title available]
[No authors listed] [No authors listed] PMID: 38340364
Patient-Reported Impact of Symptoms in Crohn's Disease.
Varma A, Weinstein J, Seabury J, Rosero S, Wagner E, Zizzi C, Luebbe E, Dilek N, McDermott M, Heatwole J, Saubermann L, Temple L, Rogoff S, Heatwole C. Varma A, et al. Among authors: dilek n. Am J Gastroenterol. 2022 Dec 1;117(12):2033-2045. doi: 10.14309/ajg.0000000000001954. Epub 2022 Aug 22. Am J Gastroenterol. 2022. PMID: 36375002 Free PMC article.
123 results