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Providing Individual Research Results to Participants.
Kaufman DJ, Lockhart NC, Brody LC. Kaufman DJ, et al. Among authors: lockhart nc. JAMA. 2018 Dec 25;320(24):2600-2601. doi: 10.1001/jama.2018.18099. JAMA. 2018. PMID: 30575871 No abstract available.
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA; eMERGE Act-ROR Committee and CERC Committee; CSER Act-ROR Working Group; Burke W. Jarvik GP, et al. Am J Hum Genet. 2014 Jun 5;94(6):818-26. doi: 10.1016/j.ajhg.2014.04.009. Epub 2014 May 8. Am J Hum Genet. 2014. PMID: 24814192 Free PMC article.
Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group.
Gray SW, Martins Y, Feuerman LZ, Bernhardt BA, Biesecker BB, Christensen KD, Joffe S, Rini C, Veenstra D, McGuire AL; CSER Consortium Outcomes and Measures Working Group. Gray SW, et al. Genet Med. 2014 Oct;16(10):727-35. doi: 10.1038/gim.2014.26. Epub 2014 Mar 13. Genet Med. 2014. PMID: 24625446 Free PMC article. Review.
Custodianship as an ethical framework for biospecimen-based research.
Yassin R, Lockhart N, González del Riego M, Pitt K, Thomas JW, Weiss L, Compton C. Yassin R, et al. Cancer Epidemiol Biomarkers Prev. 2010 Apr;19(4):1012-5. doi: 10.1158/1055-9965.EPI-10-0029. Epub 2010 Mar 23. Cancer Epidemiol Biomarkers Prev. 2010. PMID: 20332272 Free PMC article. Review.
The evolution of biobanking best practices.
Vaught J, Lockhart NC. Vaught J, et al. Among authors: lockhart nc. Clin Chim Acta. 2012 Oct 9;413(19-20):1569-75. doi: 10.1016/j.cca.2012.04.030. Epub 2012 May 3. Clin Chim Acta. 2012. PMID: 22579478 Free PMC article. Review.
Informed consent process for patient participation in rare disease registries linked to biorepositories.
Rubinstein YR, Groft SC, Chandros SH, Kaneshiro J, Karp B, Lockhart NC, Marshall PA, Moxley RT 3rd, Pollen GB, Miller VR, Schwartz J. Rubinstein YR, et al. Among authors: lockhart nc. Contemp Clin Trials. 2012 Jan;33(1):5-11. doi: 10.1016/j.cct.2011.10.004. Epub 2011 Oct 24. Contemp Clin Trials. 2012. PMID: 22036955 Free PMC article. Review. No abstract available.
A Novel Approach to High-Quality Postmortem Tissue Procurement: The GTEx Project.
Carithers LJ, Ardlie K, Barcus M, Branton PA, Britton A, Buia SA, Compton CC, DeLuca DS, Peter-Demchok J, Gelfand ET, Guan P, Korzeniewski GE, Lockhart NC, Rabiner CA, Rao AK, Robinson KL, Roche NV, Sawyer SJ, Segrè AV, Shive CE, Smith AM, Sobin LH, Undale AH, Valentino KM, Vaught J, Young TR, Moore HM; GTEx Consortium. Carithers LJ, et al. Among authors: lockhart nc. Biopreserv Biobank. 2015 Oct;13(5):311-9. doi: 10.1089/bio.2015.0032. Biopreserv Biobank. 2015. PMID: 26484571 Free PMC article.
31 results