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Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
Mascalzoni D, Bentzen HB, Budin-Ljøsne I, Bygrave LA, Bell J, Dove ES, Fuchsberger C, Hveem K, Mayrhofer MT, Meraviglia V, O'Brien DR, Pattaro C, Pramstaller PP, Rakic V, Rossini A, Shabani M, Svantesson DJB, Tomasi M, Ursin L, Wjst M, Kaye J. Mascalzoni D, et al. Among authors: kaye j. Ann Intern Med. 2019 Mar 5;170(5):332-334. doi: 10.7326/M18-2854. Epub 2019 Feb 12. Ann Intern Med. 2019. PMID: 30776795 Review. No abstract available.
Building a data sharing model for global genomic research.
Kosseim P, Dove ES, Baggaley C, Meslin EM, Cate FH, Kaye J, Harris JR, Knoppers BM. Kosseim P, et al. Among authors: kaye j. Genome Biol. 2014 Aug 11;15(8):430. doi: 10.1186/s13059-014-0430-2. Genome Biol. 2014. PMID: 25221857 Free PMC article.
Genomic cloud computing: legal and ethical points to consider.
Dove ES, Joly Y, Tassé AM; Public Population Project in Genomics and Society (P3G) International Steering Committee; International Cancer Genome Consortium (ICGC) Ethics and Policy Committee; Knoppers BM. Dove ES, et al. Eur J Hum Genet. 2015 Oct;23(10):1271-8. doi: 10.1038/ejhg.2014.196. Epub 2014 Sep 24. Eur J Hum Genet. 2015. PMID: 25248396 Free PMC article.
Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?
Budin-Ljøsne I, Mascalzoni D, Soini S, Machado H, Kaye J, Bentzen HB, Rial-Sebbag E, D'Abramo F, Witt M, Schamps G, Katić V, Krajnovic D, Harris JR. Budin-Ljøsne I, et al. Among authors: kaye j. Biopreserv Biobank. 2016 Jun;14(3):241-8. doi: 10.1089/bio.2015.0115. Epub 2016 Apr 15. Biopreserv Biobank. 2016. PMID: 27082461 Free PMC article.
Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts.
Kaye J, Briceño Moraia L, Mitchell C, Bell J, Bovenberg JA, Tassé AM, Knoppers BM. Kaye J, et al. Biopreserv Biobank. 2016 Jun;14(3):201-6. doi: 10.1089/bio.2015.0124. Epub 2016 May 16. Biopreserv Biobank. 2016. PMID: 27183185 Free PMC article.
1,547 results