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Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
Mascalzoni D, Bentzen HB, Budin-Ljøsne I, Bygrave LA, Bell J, Dove ES, Fuchsberger C, Hveem K, Mayrhofer MT, Meraviglia V, O'Brien DR, Pattaro C, Pramstaller PP, Rakic V, Rossini A, Shabani M, Svantesson DJB, Tomasi M, Ursin L, Wjst M, Kaye J. Mascalzoni D, et al. Among authors: ursin l. Ann Intern Med. 2019 Mar 5;170(5):332-334. doi: 10.7326/M18-2854. Epub 2019 Feb 12. Ann Intern Med. 2019. PMID: 30776795 Review. No abstract available.
Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research.
Goisauf M, Martin G, Bentzen HB, Budin-Ljøsne I, Ursin L, Durnová A, Leitsalu L, Smith K, Casati S, Lavitrano M, Mascalzoni D, Boeckhout M, Mayrhofer MT. Goisauf M, et al. Among authors: ursin l. PLoS One. 2019 Sep 18;14(9):e0221496. doi: 10.1371/journal.pone.0221496. eCollection 2019. PLoS One. 2019. PMID: 31532777 Free PMC article.
Correction: Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research.
Goisauf M, Martin G, Bentzen HB, Budin-Ljøsne I, Ursin L, Durnová A, Leitsalu L, Smith K, Casati S, Lavitrano M, Mascalzoni D, Boeckhout M, Mayrhofer MT. Goisauf M, et al. Among authors: ursin l. PLoS One. 2019 Dec 2;14(12):e0226149. doi: 10.1371/journal.pone.0226149. eCollection 2019. PLoS One. 2019. PMID: 31790510 Free PMC article.
Biobank research and the right to privacy.
Ursin LO. Ursin LO. Theor Med Bioeth. 2008;29(4):267-85. doi: 10.1007/s11017-008-9079-8. Epub 2008 Oct 15. Theor Med Bioeth. 2008. PMID: 18855123
20 results