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Country Reports.
Zawati MH, Chalmers D, Dallari SG, de Neiva Borba M, Pinkesz M, Joly Y, Chen H, Hartlev M, Leitsalu L, Soini S, Rial-Sebbag E, Hoppe N, Garani-Papadatos T, Vidalis P, Srinivas KR, Siegal G, Negri S, Hatanaka R, Al-Hussaini M, Al-Tabba' A, Motta-Murgía L, Moran LET, Hendriks A, Nnamuchi O, Isasi R, Krekora-Zajac D, Sadoun E, Ho C, Andanda P, Lee WB, Nicolás P, Mattsson T, Talanova V, Dosch A, Sprumont D, Fan CT, Hung TH, Nnamuchi O, Kaye J, Phillips A, Gowans H, Shah N, Hazel JW. Zawati MH, et al. J Law Med Ethics. 2019 Dec;47(4):582-704. doi: 10.1177/1073110519897736. J Law Med Ethics. 2019. PMID: 31957584 No abstract available.
Regulation of Biobanks in France.
Rial-Sebbag E, Pigeon A. Rial-Sebbag E, et al. J Law Med Ethics. 2015 Winter;43(4):754-65. doi: 10.1111/jlme.12317. J Law Med Ethics. 2015. PMID: 26711415
Including all voices in international data-sharing governance.
Kaye J, Terry SF, Juengst E, Coy S, Harris JR, Chalmers D, Dove ES, Budin-Ljøsne I, Adebamowo C, Ogbe E, Bezuidenhout L, Morrison M, Minion JT, Murtagh MJ, Minari J, Teare H, Isasi R, Kato K, Rial-Sebbag E, Marshall P, Koenig B, Cambon-Thomsen A. Kaye J, et al. Hum Genomics. 2018 Mar 7;12(1):13. doi: 10.1186/s40246-018-0143-9. Hum Genomics. 2018. PMID: 29514717 Free PMC article.
Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape.
Kalokairinou L, Howard HC, Slokenberga S, Fisher E, Flatscher-Thöni M, Hartlev M, van Hellemondt R, Juškevičius J, Kapelenska-Pregowska J, Kováč P, Lovrečić L, Nys H, de Paor A, Phillips A, Prudil L, Rial-Sebbag E, Romeo Casabona CM, Sándor J, Schuster A, Soini S, Søvig KH, Stoffel D, Titma T, Trokanas T, Borry P. Kalokairinou L, et al. J Community Genet. 2018 Apr;9(2):117-132. doi: 10.1007/s12687-017-0344-2. Epub 2017 Nov 18. J Community Genet. 2018. PMID: 29150824 Free PMC article.
Population genetic screening: current issues in a European country.
Pasquier L, Isidor B, Rial-Sebbag E, Odent S, Minguet G, Moutel G. Pasquier L, et al. Eur J Hum Genet. 2019 Sep;27(9):1321-1323. doi: 10.1038/s41431-019-0425-2. Epub 2019 May 8. Eur J Hum Genet. 2019. PMID: 31068669 Free PMC article. Review. No abstract available.
One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans.
Howard HC, van El CG, Forzano F, Radojkovic D, Rial-Sebbag E, de Wert G, Borry P, Cornel MC; Public and Professional Policy Committee of the European Society of Human Genetics. Howard HC, et al. Eur J Hum Genet. 2018 Jan;26(1):1-11. doi: 10.1038/s41431-017-0024-z. Epub 2017 Nov 30. Eur J Hum Genet. 2018. PMID: 29192152 Free PMC article.
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