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Page 1
GA4GH: International policies and standards for data sharing across genomic research and healthcare.
Rehm HL, Page AJH, Smith L, Adams JB, Alterovitz G, Babb LJ, Barkley MP, Baudis M, Beauvais MJS, Beck T, Beckmann JS, Beltran S, Bernick D, Bernier A, Bonfield JK, Boughtwood TF, Bourque G, Bowers SR, Brookes AJ, Brudno M, Brush MH, Bujold D, Burdett T, Buske OJ, Cabili MN, Cameron DL, Carroll RJ, Casas-Silva E, Chakravarty D, Chaudhari BP, Chen SH, Cherry JM, Chung J, Cline M, Clissold HL, Cook-Deegan RM, Courtot M, Cunningham F, Cupak M, Davies RM, Denisko D, Doerr MJ, Dolman LI, Dove ES, Dursi LJ, Dyke SOM, Eddy JA, Eilbeck K, Ellrott KP, Fairley S, Fakhro KA, Firth HV, Fitzsimons MS, Fiume M, Flicek P, Fore IM, Freeberg MA, Freimuth RR, Fromont LA, Fuerth J, Gaff CL, Gan W, Ghanaim EM, Glazer D, Green RC, Griffith M, Griffith OL, Grossman RL, Groza T, Auvil JMG, Guigó R, Gupta D, Haendel MA, Hamosh A, Hansen DP, Hart RK, Hartley DM, Haussler D, Hendricks-Sturrup RM, Ho CWL, Hobb AE, Hoffman MM, Hofmann OM, Holub P, Hsu JS, Hubaux JP, Hunt SE, Husami A, Jacobsen JO, Jamuar SS, Janes EL, Jeanson F, Jené A, Johns AL, Joly Y, Jones SJM, Kanitz A, Kato K, Keane TM, Kekesi-Lafrance K, Kelleher J, Kerry G, Khor SS, Knoppers BM, Konopko MA, Kosaki K, Kuba M, Lawson J, Leinonen R, Li S… See abstract for full author list ➔ Rehm HL, et al. Among authors: vears df. Cell Genom. 2021 Nov 10;1(2):100029. doi: 10.1016/j.xgen.2021.100029. Cell Genom. 2021. PMID: 35072136 Free PMC article.
Reply to Kranendonk et al.
Sénécal K, Thys K, Vears DF, Van Assche K, Knoppers BM, Borry P. Sénécal K, et al. Among authors: vears df. Eur J Hum Genet. 2017 Feb;25(2):166-167. doi: 10.1038/ejhg.2016.160. Epub 2016 Nov 23. Eur J Hum Genet. 2017. PMID: 27876816 Free PMC article. No abstract available.
Genomic newborn screening: public health policy considerations and recommendations.
Friedman JM, Cornel MC, Goldenberg AJ, Lister KJ, Sénécal K, Vears DF; Global Alliance for Genomics and Health Regulatory and Ethics Working Group Paediatric Task Team. Friedman JM, et al. Among authors: vears df. BMC Med Genomics. 2017 Feb 21;10(1):9. doi: 10.1186/s12920-017-0247-4. BMC Med Genomics. 2017. PMID: 28222731 Free PMC article.
Reply to C Harling.
Sénécal K, Thys K, Vears DF, Van Assche K, Knoppers BM, Borry P. Sénécal K, et al. Among authors: vears df. Eur J Hum Genet. 2017 Sep;25(9):1030. doi: 10.1038/ejhg.2017.89. Epub 2017 May 31. Eur J Hum Genet. 2017. PMID: 28561019 Free PMC article. No abstract available.
Key Implications of Data Sharing in Pediatric Genomics.
Rahimzadeh V, Schickhardt C, Knoppers BM, Sénécal K, Vears DF, Fernandez CV, Pfister S, Plon S, Terry S, Williams J, Williams MS, Cornel M, Friedman JM. Rahimzadeh V, et al. Among authors: vears df. JAMA Pediatr. 2018 May 1;172(5):476-481. doi: 10.1001/jamapediatrics.2017.5500. JAMA Pediatr. 2018. PMID: 29554172
'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods.
Middleton A, Niemiec E, Prainsack B, Bobe J, Farley L, Steed C, Smith J, Bevan P, Bonhomme N, Kleiderman E, Thorogood A, Schickhardt C, Garattini C, Vears D, Littler K, Banner N, Scott E, Kovalevskaya NV, Levin E, Morley KI, Howard HC. Middleton A, et al. Per Med. 2018 Jul 1;15(4):311-318. doi: 10.2217/pme-2018-0032. Epub 2018 Jun 1. Per Med. 2018. PMID: 29856292 Free article.
Attitudes of publics who are unwilling to donate DNA data for research.
Middleton A, Milne R, Thorogood A, Kleiderman E, Niemiec E, Prainsack B, Farley L, Bevan P, Steed C, Smith J, Vears D, Atutornu J, Howard HC, Morley KI. Middleton A, et al. Eur J Med Genet. 2019 May;62(5):316-323. doi: 10.1016/j.ejmg.2018.11.014. Epub 2018 Nov 23. Eur J Med Genet. 2019. PMID: 30476628 Free PMC article.
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia.
Milne R, Morley KI, Howard H, Niemiec E, Nicol D, Critchley C, Prainsack B, Vears D, Smith J, Steed C, Bevan P, Atutornu J, Farley L, Goodhand P, Thorogood A, Kleiderman E, Middleton A; Participant Values Work Stream of the Global Alliance for Genomics and Health. Milne R, et al. Hum Genet. 2019 Dec;138(11-12):1237-1246. doi: 10.1007/s00439-019-02062-0. Epub 2019 Sep 17. Hum Genet. 2019. PMID: 31531740 Free PMC article.
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