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Quality of life in a large multinational haemophilia B cohort (The B-Natural study) - Unmet needs remain.
Berntorp E, LeBeau P, Ragni MV, Borhany M, Abajas YL, Tarantino MD, Holstein K, Croteau SE, Liesner R, Tarango C, Carvalho M, McGuinn C, Funding E, Kempton CL, Bidlingmaier C, Cohen A, Oldenburg J, Kearney S, Knoll C, Kuriakose P, Acharya S, Reiss UM, Kulkarni R, Witkop M, Lethagen S, Krouse R, Shapiro AD, Astermark J. Berntorp E, et al. Among authors: kempton cl. Haemophilia. 2022 May;28(3):453-461. doi: 10.1111/hae.14525. Epub 2022 Mar 8. Haemophilia. 2022. PMID: 35263495 Free PMC article.
Screening for von Willebrand disease in children: a case-control study.
Bujnicki HC, Sidonio RF, Kempton C, Kouides PA, Kulkarni R, Nugent DJ, Yee DL, Moore CG, Ragni MV. Bujnicki HC, et al. J Thromb Haemost. 2011 May;9(5):1086-9. doi: 10.1111/j.1538-7836.2011.04261.x. J Thromb Haemost. 2011. PMID: 21410642 Free article. No abstract available.
The international factor IX treatment network survey.
Berntorp E, Shapiro AD, Waters J, Astermark J; International Factor IX Treatment Network. Berntorp E, et al. Haemophilia. 2012 May;18(3):e60-2. doi: 10.1111/j.1365-2516.2012.02767.x. Epub 2012 Mar 8. Haemophilia. 2012. PMID: 22404549 No abstract available.
Pharmacokinetic properties of IB1001, an investigational recombinant factor IX, in patients with haemophilia B: repeat pharmacokinetic evaluation and sialylation analysis.
Martinowitz U, Shapiro A, Quon DV, Escobar M, Kempton C, Collins PW, Chowdary P, Makris M, Mannucci PM, Morfini M, Valentino LA, Gomperts E, Lee M. Martinowitz U, et al. Haemophilia. 2012 Nov;18(6):881-7. doi: 10.1111/j.1365-2516.2012.02897.x. Epub 2012 Jul 5. Haemophilia. 2012. PMID: 22764744 Clinical Trial.
Prophylaxis in severe forms of von Willebrand's disease: results from the von Willebrand Disease Prophylaxis Network (VWD PN).
Abshire TC, Federici AB, Alvárez MT, Bowen J, Carcao MD, Cox Gill J, Key NS, Kouides PA, Kurnik K, Lail AE, Leebeek FW, Makris M, Mannucci PM, Winikoff R, Berntorp E; VWD PN. Abshire TC, et al. Haemophilia. 2013 Jan;19(1):76-81. doi: 10.1111/j.1365-2516.2012.02916.x. Epub 2012 Jul 23. Haemophilia. 2013. PMID: 22823000 Free PMC article.
117 results