de Vries J - Search Results

1

Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation.

Murtagh MJ, Machirori M, Gaff CL, Blell MT, de Vries J, Doerr M, Dove ES, Duncanson A, Hastings Ward J, Hendricks-Sturrup R, Ho CWL, Johns A, Joly Y, Kato K, Katsui K, Kumuthini J, Maleady-Crowe F, Middleton A, Milne R, Minion JT, Matshaba M, Mulrine S, Patch C, Ryan R, Viney W. Murtagh MJ, et al. Among authors: de vries j. Wellcome Open Res. 2021 Nov 15;6:311. doi: 10.12688/wellcomeopenres.17233.1. eCollection 2021. Wellcome Open Res. 2021. PMID: 35592835 Free PMC article.

2

RESEARCH ETHICS. Ethics review for international data-intensive research.

Dove ES, Townend D, Meslin EM, Bobrow M, Littler K, Nicol D, de Vries J, Junker A, Garattini C, Bovenberg J, Shabani M, Lévesque E, Knoppers BM. Dove ES, et al. Among authors: de vries j. Science. 2016 Mar 25;351(6280):1399-400. doi: 10.1126/science.aad5269. Science. 2016. PMID: 27013718 Free PMC article. No abstract available.

3

Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report.

Staunton C, Adams R, Dove ES, Harriman N, Horn L, Labuschaigne M, Mulder N, Olckers A, Pope A, Ramsay M, Swanepoel C, Ni Loideain N, De Vries J. Staunton C, et al. Among authors: de vries j. AAS Open Res. 2019 May 22;2:15. doi: 10.12688/aasopenres.12968.1. AAS Open Res. 2019. PMID: 32259025 Free PMC article.

4

Providing a policy framework for responsible gene drive research: an analysis of the existing governance landscape and priority areas for further research.

Thizy D, Coche I, de Vries J. Thizy D, et al. Among authors: de vries j. Wellcome Open Res. 2020 Jul 20;5:173. doi: 10.12688/wellcomeopenres.16023.1. eCollection 2020. Wellcome Open Res. 2020. PMID: 32954016 Free PMC article.

5

Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research?

Ralefala D, Kasule M, Wonkam A, Matshaba M, de Vries J. Ralefala D, et al. Among authors: de vries j. BMC Med Ethics. 2020 Nov 4;21(1):112. doi: 10.1186/s12910-020-00549-4. BMC Med Ethics. 2020. PMID: 33148222 Free PMC article.

6

Toward better governance of human genomic data.

O'Doherty KC, Shabani M, Dove ES, Bentzen HB, Borry P, Burgess MM, Chalmers D, De Vries J, Eckstein L, Fullerton SM, Juengst E, Kato K, Kaye J, Knoppers BM, Koenig BA, Manson SM, McGrail KM, McGuire AL, Meslin EM, Nicol D, Prainsack B, Terry SF, Thorogood A, Burke W. O'Doherty KC, et al. Among authors: de vries j. Nat Genet. 2021 Jan;53(1):2-8. doi: 10.1038/s41588-020-00742-6. Nat Genet. 2021. PMID: 33414545 Free PMC article.

7

Should Feedback of Individual Results be Integrated into the Consent Process in African Genomics? Participants' Views from an HIV-TB Genomics Research Project in Botswana.

Ralefala D, Kasule M, Wonkam A, Matshaba M, de Vries J. Ralefala D, et al. Among authors: de vries j. AJOB Empir Bioeth. 2022 Jan-Mar;13(1):48-56. doi: 10.1080/23294515.2021.1941414. Epub 2021 Jul 1. AJOB Empir Bioeth. 2022. PMID: 34197280

8

Participants' Preferences and Reasons for Wanting Feedback of Individual Genetic Research Results From an HIV-TB Genomic Study: A Case Study From Botswana.

Ralefala D, Kasule M, Matshabane OP, Wonkam A, Matshaba M, de Vries J. Ralefala D, et al. Among authors: de vries j. J Empir Res Hum Res Ethics. 2021 Dec;16(5):525-536. doi: 10.1177/15562646211043985. J Empir Res Hum Res Ethics. 2021. PMID: 34662218 Free PMC article.

9

Considerations of Autonomy in Guiding Decisions around the Feedback of Individual Genetic Research Results from Genomics Research: Expectations of and Preferences from Researchers in Botswana.

Kasule M, Matshaba M, Mwaka E, Wonkam A, de Vries J. Kasule M, et al. Among authors: de vries j. Glob Health Epidemiol Genom. 2022 Mar 31;2022:3245206. doi: 10.1155/2022/3245206. eCollection 2022. Glob Health Epidemiol Genom. 2022. PMID: 35441036 Free PMC article.

10

Unpacking race and ethnicity in African genomics research.

Yéré HM, Machirori M, De Vries J. Yéré HM, et al. Among authors: de vries j. Nat Rev Genet. 2022 Aug;23(8):455-456. doi: 10.1038/s41576-022-00506-4. Nat Rev Genet. 2022. PMID: 35688877 No abstract available.

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