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Assessing Bulbar Function in Spinal Muscular Atrophy Using Patient-Reported Outcomes.
Dunaway Young S, Pasternak A, Duong T, McGrattan KE, Stranberg S, Maczek E, Dias C, Tang W, Parker D, Levine A, Rohan A, Wolford C, Martens W, McDermott MP, Darras BT, Day JW. Dunaway Young S, et al. Among authors: mcgrattan ke. J Neuromuscul Dis. 2023;10(2):199-209. doi: 10.3233/JND-221573. J Neuromuscul Dis. 2023. PMID: 36776075 Free PMC article.
Development of an International SMA Bulbar Assessment for Inter-professional Administration.
Dunaway Young S, McGrattan K, Johnson E, van der Heul M, Duong T, Bakke M, Werlauff U, Pasternak A, Cattaneo C, Hoffman K, Fanelli L, Breaks A, Allison K, Baranello G, Finkel R, Coratti G, Lofra RM. Dunaway Young S, et al. J Neuromuscul Dis. 2023;10(4):639-652. doi: 10.3233/JND-221672. J Neuromuscul Dis. 2023. PMID: 37212069 Free PMC article.
Onasemnogene abeparvovec preserves bulbar function in infants with presymptomatic spinal muscular atrophy: a post-hoc analysis of the SPR1NT trial.
Shell RD, McGrattan KE, Hurst-Davis R, Young SD, Baranello G, Lavrov A, O'Brien E, Wallach S, LaMarca N, Reyna SP, Darras BT. Shell RD, et al. Among authors: mcgrattan ke. Neuromuscul Disord. 2023 Aug;33(8):670-676. doi: 10.1016/j.nmd.2023.06.005. Epub 2023 Jun 22. Neuromuscul Disord. 2023. PMID: 37455203 Free article.
266th ENMC International Workshop: Remote delivery of clinical care and validation of remote clinical outcome assessments in neuromuscular disorders: A response to COVID-19 and proactive planning for the future. Hoofddorp, The Netherlands, 1-3 April 2022.
Alfano LN, James MK, Ramdharry GM, Lowes LP; 266th ENMC Workshop Study Group. Alfano LN, et al. Neuromuscul Disord. 2023 Apr;33(4):339-348. doi: 10.1016/j.nmd.2023.02.011. Epub 2023 Mar 4. Neuromuscul Disord. 2023. PMID: 36965197 No abstract available.
Establishing Normative Values for Healthy Term Infant Feeding Performance: Neonatal Eating Assessment Tool-Mixed, Oral Feeding Scale, and Early Feeding Skills Assessment.
McGrattan KE, Mohr AH, Weikle E, Hernandez K, Walsh K, Park J, Ramel SE, Georgieff MK, Dietz K, Dahlstrom K, Lindsay J, Thoyre S. McGrattan KE, et al. Am J Speech Lang Pathol. 2023 Nov 6;32(6):2792-2801. doi: 10.1044/2023_AJSLP-22-00372. Epub 2023 Sep 8. Am J Speech Lang Pathol. 2023. PMID: 37682537
18 results