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Global health measures from a National Down Syndrome Registry.
Santoro SL, Haugen K, Donelan K, Skotko BG. Santoro SL, et al. Among authors: donelan k. Am J Med Genet A. 2023 Aug;191(8):2092-2099. doi: 10.1002/ajmg.a.63243. Epub 2023 May 14. Am J Med Genet A. 2023. PMID: 37183579
A randomized controlled trial of an online health tool about Down syndrome.
Chung J, Donelan K, Macklin EA, Schwartz A, Elsharkawi I, Torres A, Hsieh YG, Parker H, Lorenz S, Patsiogiannis V, Santoro SL, Wylie M, Clarke L, Estey G, Baker S, Bauer PE, Bull M, Chicoine B, Cullen S, Frey-Vogel A, Gallagher M, Hasan R, Lamb A, Majewski L, Mast J, Riddell T, Sepucha K, Skavlem M, Skotko BG. Chung J, et al. Among authors: donelan k. Genet Med. 2021 Jan;23(1):163-173. doi: 10.1038/s41436-020-00952-7. Epub 2020 Sep 3. Genet Med. 2021. PMID: 32879436 Free article. Clinical Trial.
Correction: A randomized controlled trial of an online health tool about Down syndrome.
Chung J, Donelan K, Macklin EA, Schwartz A, Elsharkawi I, Torres A, Hsieh YG, Parker H, Lorenz S, Patsiogiannis V, Santoro SL, Wylie M, Clarke L, Estey G, Baker S, Bauer PE, Bull M, Chicoine B, Cullen S, Frey-Vogel A, Gallagher M, Hasan R, Lamb A, Majewski L, Mast J, Riddell T, Sepucha K, Skavlem M, Skotko BG. Chung J, et al. Among authors: donelan k. Genet Med. 2021 Jan;23(1):236. doi: 10.1038/s41436-020-01033-5. Genet Med. 2021. PMID: 33169000 Free article. No abstract available.
Piloting the use of global health measures in a Down syndrome clinic.
Santoro SL, Campbell A, Cottrell C, Donelan K, Majewski B, Oreskovic NM, Patsiogiannis V, Torres A, Skotko BG. Santoro SL, et al. Among authors: donelan k. J Appl Res Intellect Disabil. 2021 Jul;34(4):1108-1117. doi: 10.1111/jar.12866. Epub 2021 Mar 23. J Appl Res Intellect Disabil. 2021. PMID: 33759305 Free PMC article.
Assessment of Stakeholder Engagement in a Down Syndrome Research Study.
Chung J, Sarathy A, Hsieh YG, Estey G, Torres A, Patsiogiannis V, Donelan K, Skotko BG. Chung J, et al. Among authors: donelan k. J Patient Cent Res Rev. 2021 Jan 19;8(1):64-67. doi: 10.17294/2330-0698.1777. eCollection 2021 Winter. J Patient Cent Res Rev. 2021. PMID: 33511255 Free PMC article.
209 results