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192 results

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Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial.
Kwakkenbos L, Carrier ME, Welling J, Levis B, Levis AW, Sauve M, Turner KA, Tao L, Aguila K, Carboni-Jiménez A, Cañedo-Ayala M, Harb S, van den Ende C, Hudson M, van Breda W, Nguyen C, Boutron I, Rannou F, Thombs BD, Mouthon L; SPIN Investigators. Kwakkenbos L, et al. Trials. 2022 Dec 12;23(1):994. doi: 10.1186/s13063-022-06923-4. Trials. 2022. PMID: 36510233 Free PMC article. Clinical Trial.
Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study.
Henry RS, Kwakkenbos L, Carrier ME, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN COVID-19 Patient Advisory Team for the SPIN Investigators. Henry RS, et al. Clin Exp Rheumatol. 2023 Aug;41(8):1639-1643. doi: 10.55563/clinexprheumatol/cca0xv. Epub 2023 Apr 19. Clin Exp Rheumatol. 2023. PMID: 37083160 Free article.
Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study.
Wojeck RK, Knisely MR, Bailey DE, Somers TJ, Kwakkenbos L, Carrier ME, Nielson WR, Bartlett SJ, Malcarne VL, Hudson M, Levis B, Benedetti A, Mouthon L, Thombs BD, Silva SG; SPIN Investigators. Wojeck RK, et al. Among authors: malcarne vl. EClinicalMedicine. 2023 Jul 20;62:102104. doi: 10.1016/j.eclinm.2023.102104. eCollection 2023 Aug. EClinicalMedicine. 2023. PMID: 37533421 Free PMC article.
Differential Item Functioning on the Cochin Hand Function Scale Among People With Systemic Sclerosis by Language, Sex, and Disease Subtype: A Scleroderma Patient-Centered Intervention Network (SPIN) Cohort Study.
Xu M, Harel D, Carrier ME, Kwakkenbos L, Bartlett SJ, Gottesman K, Guillot G, Hummers L, Malcarne VL, Richard M, Thombs BD; SPIN Investigators. Xu M, et al. Among authors: malcarne vl. Arthritis Care Res (Hoboken). 2023 Jul 24. doi: 10.1002/acr.25199. Online ahead of print. Arthritis Care Res (Hoboken). 2023. PMID: 37489073
Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Wojeck RK, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Worron-Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Thombs BD; SPIN Investigators. Neyer MA, et al. Arthritis Care Res (Hoboken). 2023 Nov;75(11):2369-2378. doi: 10.1002/acr.25139. Epub 2023 Jun 7. Arthritis Care Res (Hoboken). 2023. PMID: 37128826
A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members.
Wurz A, Duchek D, Ellis K, Bansal M, Carrier ME, Tao L, Dyas L, Kwakkenbos L, Levis B, El-Baalbaki G, Rice DB, Wu Y, Henry RS, Bustamante L, Harb S, Hebblethwaite S, Patten SB, Bartlett SJ, Varga J, Mouthon L, Markham S, Thombs BD, Culos-Reed SN; SPIN-CHAT Patient Advisory Team; Program Facilitators; Scleroderma Patient-centered Intervention Network Investigators. Wurz A, et al. Disabil Rehabil. 2024 Feb;46(3):533-545. doi: 10.1080/09638288.2023.2169775. Epub 2023 Jan 28. Disabil Rehabil. 2024. PMID: 36708187
The association of resilience and positive mental health in systemic sclerosis: A Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study.
Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Virgili-Gervais G, Wojeck RK, Wurz A, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Benedetti A, Thombs BD; SPIN Investigators. Neyer MA, et al. Among authors: malcarne vl. J Psychosom Res. 2024 Apr;179:111648. doi: 10.1016/j.jpsychores.2024.111648. Epub 2024 Mar 11. J Psychosom Res. 2024. PMID: 38507968 Free article.
Factors associated with physical function among people with systemic sclerosis: a SPIN cohort cross-sectional study.
Dal Santo T, Rice DB, Carrier ME, Virgili-Gervais G, Levis B, Kwakkenbos L, Golberg M, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Malcarne VL, Mayes MD, Mouthon L, Richard M, Sauvé M, Wojeck RK, Geoffroy MC, Benedetti A, Thombs BD; SPIN investigators. Dal Santo T, et al. Among authors: malcarne vl. Rheumatology (Oxford). 2024 Mar 12:keae162. doi: 10.1093/rheumatology/keae162. Online ahead of print. Rheumatology (Oxford). 2024. PMID: 38471107
Factors associated with satisfaction with social roles and activities among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study.
Dal Santo T, Rice D, Carrier ME, Virgili-Gervais G, Levis B, Kwakkenbos L, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Malcarne V, Mayes M, Mouthon L, Richard M, Sauve M, Wojeck R, Geoffroy MC, Benedetti A, Thombs B; SPIN investigators. Dal Santo T, et al. Among authors: malcarne v. RMD Open. 2024 Feb 29;10(1):e003876. doi: 10.1136/rmdopen-2023-003876. RMD Open. 2024. PMID: 38428973 Free PMC article.
192 results