Goldenberg AJ - Search Results

1

Pediatric biobanks: approaching informed consent for continuing research after children grow up.

Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS. Goldenberg AJ, et al. J Pediatr. 2009 Oct;155(4):578-83. doi: 10.1016/j.jpeds.2009.04.034. J Pediatr. 2009. PMID: 19595370 Free PMC article.

2

Patient perspectives on group benefits and harms in genetic research.

Goldenberg AJ, Hull SC, Wilfond BS, Sharp RR. Goldenberg AJ, et al. Public Health Genomics. 2011;14(3):135-42. doi: 10.1159/000317497. Epub 2010 Oct 8. Public Health Genomics. 2011. PMID: 20938159 Free PMC article.

3

Concerns of newborn blood screening advisory committee members regarding storage and use of residual newborn screening blood spots.

Rothwell EW, Anderson RA, Burbank MJ, Goldenberg AJ, Lewis MH, Stark LA, Wong B, Botkin JR. Rothwell EW, et al. Among authors: goldenberg aj. Am J Public Health. 2011 Nov;101(11):2111-6. doi: 10.2105/AJPH.2010.200485. Epub 2011 Feb 17. Am J Public Health. 2011. PMID: 21330580 Free PMC article.

4

State laws regarding the retention and use of residual newborn screening blood samples.

Lewis MH, Goldenberg A, Anderson R, Rothwell E, Botkin J. Lewis MH, et al. Pediatrics. 2011 Apr;127(4):703-12. doi: 10.1542/peds.2010-1468. Epub 2011 Mar 28. Pediatrics. 2011. PMID: 21444595 Free PMC article.

5

Public attitudes regarding the use of residual newborn screening specimens for research.

Botkin JR, Rothwell E, Anderson R, Stark L, Goldenberg A, Lewis M, Burbank M, Wong B. Botkin JR, et al. Pediatrics. 2012 Feb;129(2):231-8. doi: 10.1542/peds.2011-0970. Epub 2012 Jan 16. Pediatrics. 2012. PMID: 22250018 Free PMC article.

6

Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study.

Rothwell E, Anderson R, Goldenberg A, Lewis MH, Stark L, Burbank M, Wong B, Botkin JR. Rothwell E, et al. Soc Sci Med. 2012 Apr;74(8):1305-9. doi: 10.1016/j.socscimed.2011.12.047. Epub 2012 Feb 18. Soc Sci Med. 2012. PMID: 22398141 Free PMC article.

7

Retention and research use of residual newborn screening bloodspots.

Botkin JR, Goldenberg AJ, Rothwell E, Anderson RA, Lewis MH. Botkin JR, et al. Among authors: goldenberg aj. Pediatrics. 2013 Jan;131(1):120-7. doi: 10.1542/peds.2012-0852. Epub 2012 Dec 3. Pediatrics. 2013. PMID: 23209103 Free PMC article. Review.

8

Parental permission for pilot newborn screening research: guidelines from the NBSTRN.

Botkin JR, Lewis MH, Watson MS, Swoboda KJ, Anderson R, Berry SA, Bonhomme N, Brosco JP, Comeau AM, Goldenberg A, Goldman E, Therrell B, Levy-Fisch J, Tarini B, Wilfond B; Bioethics and Legal Work Group of the Newborn Screening Translational Research Network. Botkin JR, et al. Pediatrics. 2014 Feb;133(2):e410-7. doi: 10.1542/peds.2013-2271. Epub 2014 Jan 6. Pediatrics. 2014. PMID: 24394680 Free PMC article.

9

What parents want to know about the storage and use of residual newborn bloodspots.

Botkin JR, Rothwell E, Anderson RA, Goldenberg A, Kuppermann M, Dolan SM, Rose NC, Stark L. Botkin JR, et al. Am J Med Genet A. 2014 Nov;164A(11):2739-44. doi: 10.1002/ajmg.a.36694. Epub 2014 Aug 4. Am J Med Genet A. 2014. PMID: 25131714 Free PMC article.

10

Communicating with biobank participants: preferences for receiving and providing updates to researchers.

Mester JL, Mercer M, Goldenberg A, Moore RA, Eng C, Sharp RR. Mester JL, et al. Cancer Epidemiol Biomarkers Prev. 2015 Apr;24(4):708-12. doi: 10.1158/1055-9965.EPI-13-1375. Epub 2015 Jan 18. Cancer Epidemiol Biomarkers Prev. 2015. PMID: 25597748 Free PMC article.

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