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Non-genetic risk factors and the development of inhibitors in haemophilia: a comprehensive review and consensus report.
Astermark J, Altisent C, Batorova A, Diniz MJ, Gringeri A, Holme PA, Karafoulidou A, Lopez-Fernández MF, Reipert BM, Rocino A, Schiavoni M, von Depka M, Windyga J, Fijnvandraat K; European Haemophilia Therapy Standardisation Board. Astermark J, et al. Among authors: gringeri a. Haemophilia. 2010 Sep 1;16(5):747-66. doi: 10.1111/j.1365-2516.2010.02231.x. Epub 2010 Apr 14. Haemophilia. 2010. PMID: 20398077 Review.
Why should we care about quality of life in persons with haemophilia?
Aledort L, Bullinger M, von Mackensen S, Wasserman J, Young NL, Globe D; Health Related Quality of Life Expert Working Group of the International Prophylaxis Study Group. Aledort L, et al. Haemophilia. 2012 May;18(3):e154-7. doi: 10.1111/j.1365-2516.2012.02771.x. Epub 2012 Feb 22. Haemophilia. 2012. PMID: 22356125
The value-based healthcare approach to haemophilia: Development of outcome measures for the evaluation of care of people with haemophilia.
Cortesi PA, Fornari C, Conti S, Pollio B, Boccalandro E, Buzzi A, Carulli C, Coppola A, De Cristofaro R, Di Minno MND, Dolan G, Ferri Grazzi E, Fornari A, Gualtierotti R, Hermans C, Jiménez-Juste V, Kenet G, Lupi A, Martinoli C, Mansueto MF, Nicolò G, Tagliaferri A, Gringeri A, Molinari AC, Mantovani LG, Castaman G; V.B.H. project group. Cortesi PA, et al. Among authors: gringeri a. Haemophilia. 2024 Mar;30(2):437-448. doi: 10.1111/hae.14943. Epub 2024 Feb 5. Haemophilia. 2024. PMID: 38314918
Measuring patient-reported outcomes in haemophilia clinical research.
Globe D, Young NL, Von Mackensen S, Bullinger M, Wasserman J; Healthrelated Quality Of Life Expert Working Group Of The International Prophylaxis Study Group. Globe D, et al. Haemophilia. 2009 Jul;15(4):843-52. doi: 10.1111/j.1365-2516.2008.01961.x. Epub 2009 Apr 7. Haemophilia. 2009. PMID: 19473425 Review.
New orphan disease therapies from the proteome of industrial plasma processing waste- a treatment for aceruloplasminemia.
Zanardi A, Nardini I, Raia S, Conti A, Ferrini B, D'Adamo P, Gilberti E, DePalma G, Belloli S, Monterisi C, Coliva A, Rainone P, Moresco RM, Mori F, Zurlo G, Scali C, Natali L, Pancanti A, Giovacchini P, Magherini G, Tovani G, Salvini L, Cicaloni V, Tinti C, Tinti L, Lana D, Magni G, Giovannini MG, Gringeri A, Caricasole A, Alessio M. Zanardi A, et al. Among authors: gringeri a. Commun Biol. 2024 Jan 30;7(1):140. doi: 10.1038/s42003-024-05820-7. Commun Biol. 2024. PMID: 38291108 Free PMC article.
191 results