Wilfond BS - Search Results

1

Pediatric biobanks: approaching informed consent for continuing research after children grow up.

Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS. Goldenberg AJ, et al. Among authors: wilfond bs. J Pediatr. 2009 Oct;155(4):578-83. doi: 10.1016/j.jpeds.2009.04.034. J Pediatr. 2009. PMID: 19595370 Free PMC article.

2

Patient perspectives on group benefits and harms in genetic research.

Goldenberg AJ, Hull SC, Wilfond BS, Sharp RR. Goldenberg AJ, et al. Among authors: wilfond bs. Public Health Genomics. 2011;14(3):135-42. doi: 10.1159/000317497. Epub 2010 Oct 8. Public Health Genomics. 2011. PMID: 20938159 Free PMC article.

3

When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority.

Brothers KB, Holm IA, Childerhose JE, Antommaria AHM, Bernhardt BA, Clayton EW, Gelb BD, Joffe S, Lynch JA, McCormick JB, McCullough LB, Parsons DW, Sundaresan AS, Wolf WA, Yu JH, Wilfond BS; Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium. Brothers KB, et al. Among authors: wilfond bs. J Pediatr. 2016 Jan;168:226-231.e1. doi: 10.1016/j.jpeds.2015.09.020. Epub 2015 Oct 23. J Pediatr. 2016. PMID: 26477867 Free PMC article. No abstract available.

4

Patients' views on identifiability of samples and informed consent for genetic research.

Hull SC, Sharp RR, Botkin JR, Brown M, Hughes M, Sugarman J, Schwinn D, Sankar P, Bolcic-Jankovic D, Clarridge BR, Wilfond BS. Hull SC, et al. Among authors: wilfond bs. Am J Bioeth. 2008 Oct;8(10):62-70. doi: 10.1080/15265160802478404. Am J Bioeth. 2008. PMID: 19003716 Free PMC article.

5

Institutional review board practices regarding assent in pediatric research.

Whittle A, Shah S, Wilfond B, Gensler G, Wendler D. Whittle A, et al. Pediatrics. 2004 Jun;113(6):1747-52. doi: 10.1542/peds.113.6.1747. Pediatrics. 2004. PMID: 15173501

6

Limitations of direct-to-consumer advertising for clinical genetic testing.

Gollust SE, Hull SC, Wilfond BS. Gollust SE, et al. Among authors: wilfond bs. JAMA. 2002 Oct 9;288(14):1762-7. doi: 10.1001/jama.288.14.1762. JAMA. 2002. PMID: 12365961

7

Genetic research involving human biological materials: a need to tailor current consent forms.

Hull SC, Gooding H, Klein AP, Warshauer-Baker E, Metosky S, Wilfond BS. Hull SC, et al. Among authors: wilfond bs. IRB. 2004 May-Jun;26(3):1-7. IRB. 2004. PMID: 15281193 No abstract available.

8

Recruitment approaches for family studies: attitudes of index patients and their relatives.

Hull SC, Glanz K, Steffen A, Wilfond BS. Hull SC, et al. Among authors: wilfond bs. IRB. 2004 Jul-Aug;26(4):12-7. IRB. 2004. PMID: 15449410 Free PMC article. No abstract available.

9

What does it mean to be identifiable?

Hull SC, Wilfond BS. Hull SC, et al. Among authors: wilfond bs. Am J Bioeth. 2008 Oct;8(10):W7-8. doi: 10.1080/15265160802519538. Am J Bioeth. 2008. PMID: 19003695 No abstract available.

10

Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.

Botkin JR, Belmont JW, Berg JS, Berkman BE, Bombard Y, Holm IA, Levy HP, Ormond KE, Saal HM, Spinner NB, Wilfond BS, McInerney JD. Botkin JR, et al. Among authors: wilfond bs. Am J Hum Genet. 2015 Jul 2;97(1):6-21. doi: 10.1016/j.ajhg.2015.05.022. Am J Hum Genet. 2015. PMID: 26140447 Free PMC article. Review.

Save citations to file

Email citations

Send citations to clipboard

Add to Collections

Add to My Bibliography

Create a file for external citation management software

Your saved search

Your RSS Feed

My NCBI Filters

Text availability

Article attribute

Article type

Publication date

294 results

Search Page