Social support and social isolation in adults with cystic fibrosis: An integrative review

Abstract

Background Adults with cystic fibrosis have unique barriers that may decrease their ability to receive adequate social support and socialization, leading to social isolation. Social isolation has been correlated with negative health outcomes in other populations. In those with cystic fibrosis, social isolation may present additional physiological and psychological challenges, potentially interfering with clinical outcomes and quality of life. However, there is a lack of understanding as to how social isolation presents in this population. Methods The purpose of this integrative review is to identify and critically analyze how social support and social isolation are reported for adults with cystic fibrosis. PubMed, Scopus, and CINAHL Complete were searched for related publications, resulting in an initial yield of 1767 articles. After eligibility screening, 21 studies met the criteria for this review, which were all then critically analyzed and synthesized. Results There is a scarcity of literature focusing on social isolation and social support in this population. Reduced physical and mental health were the most commonly reported variables associated with reduced social functioning and social support. Conclusion Preliminary studies are warranted to understand how adults with cystic fibrosis experience social isolation, as well as its relationship to social support. This knowledge can guide future research focusing on physical and psychological effects of social isolation, along with interventions that facilitate socialization and support.

Keywords: Adults with cystic fibrosis; Cystic fibrosis; Social isolation; Social support.