[The impact of Hungtinton's disease on the family]

An Sist Sanit Navar. 2012 May-Aug;35(2):295-307. doi: 10.4321/s1137-66272012000200011.
[Article in Spanish]

Abstract

This article describes the structural and emotional disturbances in families with one or more members affected by Huntington's disease, according to the different symptoms, the affected member (offspring, parent) and the different stages of the disease. We consider that support services to the family should be made up of professionals who are specialists in the specific needs of the disease and who should help to plan and design individual, suitable and flexible support. This support should focus on overcoming the impact of the disease, providing relevant information, seeking practical solutions, giving emotional support, designing specific care in each case and each stage, and reducing fear of the future.

Publication types

  • English Abstract
  • Review

MeSH terms

  • Family* / psychology
  • Humans
  • Huntington Disease* / psychology
  • Huntington Disease* / therapy