Survey of patients with age-related macular degeneration: knowledge and adherence to recommendations

Can J Ophthalmol. 2013 Jun;48(3):204-9. doi: 10.1016/j.jcjo.2013.01.013.

Abstract

Objective: To evaluate the patient's understanding of the importance and adherence to the various lifestyle and Age-Related Eye Disease Study (AREDS) supplement recommendations for age-related macular degeneration (AMD).

Design: Cross-sectional study.

Participants: Patients with AMD treated at the vitreoretinal service clinic.

Methods: Telephone questionnaire survey was administered to assess knowledge and adherence to various recommendations made to patients with AMD about lifestyle and AREDS supplements in this single-institution study.

Results: Among 92 patients with AMD contacted, dietary modification, exercise and weight reduction, smoking cessation, and AREDS supplementation recommendations were recalled by 47 (51%), 21 (23%), 5 (5%), and 90 (98%) patients, respectively. The necessity of making these interventions was believed by 29 (62%), 16 (76%), 4 (80%), and 67 (74%) patients, respectively. Patient adherence to dietary modification was 81%, to exercise and weight reduction was 76%, to smoking cessation was 0%, and to AREDS supplementation was 88% (71% on correct dose). Financially, 29% of the patients noted a mean increase of $88 per month in expenditure because of making dietary modifications, but most reported such as justified; 61% noted a mean increase of $25 per month in expenditure from consumption of AREDS supplements, and most (96%) believed this was justified.

Conclusions: Patients with AMD recalled recommendations for AREDS supplementation more often than other lifestyle changes but generally felt recommendations were necessary and affordable. Adherence to smoking cessation recommendation was poor (0%), but to other recommendations was good.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Aged, 80 and over
  • Antioxidants / administration & dosage*
  • Ascorbic Acid / administration & dosage
  • California / epidemiology
  • Cross-Sectional Studies
  • Dietary Supplements*
  • Feeding Behavior
  • Female
  • Guideline Adherence
  • Health Knowledge, Attitudes, Practice*
  • Health Surveys
  • Humans
  • Life Style
  • Macular Degeneration / epidemiology*
  • Macular Degeneration / prevention & control
  • Male
  • Middle Aged
  • Patient Compliance / statistics & numerical data*
  • Quality of Life
  • Surveys and Questionnaires
  • Vitamin E / administration & dosage
  • Vitamins / administration & dosage
  • Zinc Compounds / administration & dosage
  • beta Carotene / administration & dosage

Substances

  • Antioxidants
  • Vitamins
  • Zinc Compounds
  • beta Carotene
  • Vitamin E
  • Ascorbic Acid