[Transition from paediatric to adult cystic fibrosis care centre]

Rev Pneumol Clin. 2016 Feb;72(1):72-6. doi: 10.1016/j.pneumo.2015.03.001. Epub 2015 Jul 17.
[Article in French]

Abstract

The number of adolescents and young adults with chronic diseases has increased dramatically over the last decade. This led paediatric teams to organize the transition to adult centres with the aim to ensure the quality of care and prognosis, adherence to survey and treatment. To promote a good work and family life is also a challenge. Several studies have shown the importance of a successful transition in cystic fibrosis (CF) in order to prevent complications and loss monitoring and to improve the perception of patients and their families. In France in 2003, cystic fibrosis centres (CRCM) have been identified and among them of adult CF centres. The regular increase of the adult centre's active file requires improving the transition process. It is necessary to improve the transition process and to prepare the young patient and their family early during adolescence. The process in place should concern the whole aspects of care, i.e., medical, psychological and educational. The transition to adulthood will be successful if it results in a stable state of the disease allowing family and career plans.

Keywords: Adolescent; Cystic fibrosis; Mucoviscidose; Quality of life; Qualité de vie; Therapeutic education; Transition pédiatrie adulte; Transitional care; Éducation thérapeutique.

Publication types

  • Review

MeSH terms

  • Adolescent
  • Adult
  • Child
  • Chronic Disease
  • Cystic Fibrosis / therapy*
  • France
  • Humans
  • Pediatrics / organization & administration
  • Quality Improvement
  • Transition to Adult Care* / organization & administration
  • Transition to Adult Care* / standards
  • Young Adult