The AREST CF experience in biobanking - More than just tissues, tubes and time

Luke W Garratt; Anthony Kicic; Colin Robertson; Sarath Ranganathan; Peter D Sly; Stephen M Stick; AREST CF

doi:10.1016/j.jcf.2017.08.003

The AREST CF experience in biobanking - More than just tissues, tubes and time

J Cyst Fibros. 2017 Sep;16(5):622-627. doi: 10.1016/j.jcf.2017.08.003. Epub 2017 Aug 10.

Authors

Luke W Garratt¹, Anthony Kicic², Colin Robertson³, Sarath Ranganathan³, Peter D Sly⁴, Stephen M Stick⁵; AREST CF

Affiliations

¹ Telethon Kids Institute, University of Western Australia, Subiaco, Australia. Electronic address: luke.garratt@telethonkids.org.au.
² Telethon Kids Institute, University of Western Australia, Subiaco, Australia; School of Paediatrics and Child Health, University of Western Australia, Subiaco, Australia; Centre for Cell Therapy and Regenerative Medicine, School of Medicine and Pharmacology, University of Western Australia, Subiaco, Australia; Department of Respiratory Medicine, Princess Margaret Hospital for Children, Subiaco, Australia; Occupation and Environment, School of Public Health, Curtin University, Bentley, Australia.
³ Department of Respiratory Medicine, Royal Children's Hospital, Parkville, Australia; Murdoch Children's Research Institute, Parkville, Australia; Department of Paediatrics, University of Melbourne, Parkville, Australia.
⁴ Children's Lung, Environment and Asthma Research, Child Health Research Centre, University of Queensland, Brisbane, Australia.
⁵ Telethon Kids Institute, University of Western Australia, Subiaco, Australia; School of Paediatrics and Child Health, University of Western Australia, Subiaco, Australia; Centre for Cell Therapy and Regenerative Medicine, School of Medicine and Pharmacology, University of Western Australia, Subiaco, Australia; Department of Respiratory Medicine, Princess Margaret Hospital for Children, Subiaco, Australia.

PMID: 28803050
DOI: 10.1016/j.jcf.2017.08.003

Abstract

Research to further improve outcomes for people with CF is dependent upon well characterised, archived and accessible clinical specimens. The recent article by Beekman et al. published in Journal of Cystic Fibrosis summarised a scientific meeting at the 13th ECFS Basic Science Conference. This meeting discussed how well-annotated, clinical biobanks for CF could be established in Europe to meet the needs of therapeutic development. The Australian Respiratory Early Surveillance Team for Cystic Fibrosis (AREST CF) has conducted biobanking of CF research and clinical specimens since the late 1990s and is custodian of the most comprehensive paediatric CF biobank in the world that focuses on the first years of life. This short communication will describe the approach undertaken by AREST CF in establishing a clinical specimen biobank.

Keywords: Biobanking; Clinical research; Research governance.

MeSH terms

Australia
Biological Specimen Banks / organization & administration*
Biomedical Research* / methods
Biomedical Research* / organization & administration
Cystic Fibrosis* / epidemiology
Cystic Fibrosis* / therapy
Data Collection / statistics & numerical data*
Humans