Adoption and genetic prediction for Huntington's disease

Lancet. 1988 Nov 5;2(8619):1069-70. doi: 10.1016/s0140-6736(88)90078-5.

Abstract

KIE: The authors believe that predictive testing of children placed for adoption who are at risk for Huntington's disease would favor the interests of a third party over those of the child and thereby violate the established principle of giving paramount consideration to the child's welfare in adoption proceedings. Other reasons to prevent the testing of children placed for adoption are that the constraints of a research project still apply to predictive testing and impose stringent requirements for informed consent by children under the age of 10, that many doctors oppose the testing of minors for Huntington's disease in particular, and that onset of the disease before the age of 20 is rare.

MeSH terms

  • Adolescent
  • Adoption / legislation & jurisprudence*
  • Adult
  • Age Factors
  • Child
  • Ethics, Medical
  • Humans
  • Huntington Disease / genetics*
  • Infant
  • Middle Aged
  • Predictive Value of Tests*
  • Risk Assessment
  • Risk Factors
  • Wales