Creating space to discuss end-of-life issues in cancer care

Patient Educ Couns. 2019 Feb;102(2):216-222. doi: 10.1016/j.pec.2018.07.002. Epub 2018 Jul 6.

Abstract

Objectives: Analyze entire oncology clinical visits and examine instances in which oncologists have to break the bad news that patients' treatments are no longer effective.

Methods: Using conversation analysis we examine 128 audio recorded conversations between terminal cancer patients, their caregivers, and oncologists.

Results: When oncologists break the bad news that a patient's treatment is no longer effective, they often use a conversational device we call an "exhausted current treatment" (ECT) statement, which avoids discussing prognosis in favor of further discussing treatment options. Analysis suggests that improving and prioritizing patient-centered care and shared decision making is possible if we first understand the social organization of clinical visits.

Conclusions: ECT statements and their movement towards discussing treatment options means that opportunities are bypassed for patients and caregivers to process or discuss scan results, and their prognostic implications.

Practice implications: When oncologists and patients, by fixating on treatment options, bypass opportunities to discuss the meaning of scan results, they fail to realize other goals associated with prognostic awareness. Talking about what scans mean may add minutes to that part of the clinic visit, but can create efficiencies that conserve overall time. We recommend that oncologists, after delivering scan news, ask, "Would you like discuss what this means?".

Keywords: Conversation analysis; End-of-life communication; Patient-centered care; Patient-physician interactions.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Caregivers / psychology*
  • Communication*
  • Decision Making
  • Female
  • Humans
  • Male
  • Middle Aged
  • Neoplasms / psychology
  • Neoplasms / therapy*
  • Patient-Centered Care / organization & administration*
  • Physician-Patient Relations*
  • Physicians / psychology*
  • Professional-Family Relations*
  • Terminal Care*