Identifying Children with Special Health Care Needs Using Medicaid Data in New York State Medicaid Managed Care

Health Serv Res. 2018 Dec;53(6):4157-4177. doi: 10.1111/1475-6773.13047. Epub 2018 Sep 21.

Abstract

Objective: The ability to identify children with special health care needs (CSHCN) is crucial to evaluate disparities in the quality of health care for children in Medicaid Managed Care. We developed and assessed the accuracy of a new method to classify CSHCN.

Data sources: Secondary data analysis was conducted using NYS Medicaid administrative data and the Children with Chronic Conditions Screener (CCC Screener).

Study design: This study included 5,907 NYS Medicaid beneficiaries (17 years old or younger) whose parents completed the CCC Screener in 2014. Medicaid administrative data were used to create a risk score to assess the risk of special needs, and a cut point was identified to differentiate between children with versus without special needs. Diagnostic accuracy of the method was assessed using sensitivity and specificity analyses.

Principal findings: Applying the CCC Screener as the "gold standard," the risk score correctly classified the majority of CSHCN as positive (sensitivity = 75 percent) and the majority of the children without special needs as negative (specificity = 79 percent). This method demonstrated decent diagnostic ability (AUC = 0.77).

Conclusions: Our method can identify CSHCN in the NYS Medicaid Managed Care population and will help the State monitor the quality of care for this vulnerable population.

Keywords: Chronic disease; Medicaid; administrative data uses; child and adolescent health; disability; mental health.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Administrative Claims, Healthcare
  • Adolescent
  • Child
  • Child Health Services* / statistics & numerical data
  • Child, Preschool
  • Chronic Disease
  • Disabled Children / statistics & numerical data*
  • Female
  • Health Care Surveys
  • Humans
  • Infant
  • Infant, Newborn
  • Male
  • Managed Care Programs / statistics & numerical data*
  • Mass Screening / methods
  • Medicaid / statistics & numerical data*
  • Needs Assessment*
  • New York
  • Risk Factors
  • Sensitivity and Specificity
  • United States