Providing paediatric power wheelchairs in the USA then and now: a survey of providers

Disabil Rehabil Assist Technol. 2020 Aug;15(6):708-717. doi: 10.1080/17483107.2019.1617358. Epub 2019 Jun 8.

Abstract

Aims: To explore and describe current practices in the USA related to the provision of paediatric power wheelchairs (PWCs) from the perspective of professionals involved in recommending, ordering or prescribing a PWC, and to compare and contrast current PWC practices to findings of a 2001 survey.Materials and methods: This descriptive study utilized a web-based survey to collect quantitative and qualitative data related to paediatric PWC evaluation activities, recommendations, decision-making considerations and other issues related to the provision of paediatric PWCs.Results: Both child and non-child related PWC evaluation activities were reported as frequently occurring and important. Recommendations for a child who was evaluated for a PWC but who was not endorsed to receive one included extended PWC practice and determining a child's mobility prognosis. The average age of the youngest child for whom respondents had recommended a PWC was 3 years, 3.56 months. Significant differences between the responses to this 2018 survey and a 2001 survey were found suggesting possible changes in practice pertaining to PWC evaluation activities as well as to recommendations for a child who is not endorsed to receive a PWC.Conclusions: Findings of the current survey suggest that barriers exist to a child, especially a younger child, obtaining a PWC.Implications for RehabilitationFindings of the current (2018) survey suggest that barriers exist to a child obtaining a PWC.Respondents reported that the primary reasons for not recommending a paediatric PWC included cognitive, physical and behavioural factors.Respondents reported that the primary reasons a paediatric PWC was not obtained for a child who qualified to receive a PWC related to family support, transportation and home environment.Differences between responses to 2018 survey and the 2001 survey indicate changes in practice.

Keywords: Paediatric power wheelchairs; paediatrics; providers’ perspectives; providers’ practice; survey methods.

MeSH terms

  • Adolescent
  • Adult
  • Attitude of Health Personnel*
  • Child
  • Child, Preschool
  • Clinical Decision-Making*
  • Disabled Children / rehabilitation*
  • Electric Power Supplies
  • Health Services Accessibility*
  • Humans
  • Infant
  • Infant, Newborn
  • Practice Patterns, Physicians'
  • Qualitative Research
  • Surveys and Questionnaires
  • United States
  • Wheelchairs*
  • Young Adult