A Process-Based Approach to Responding to Parents or Guardians Who Hope for a Miracle

Pediatrics. 2020 Mar;145(3):e20192319. doi: 10.1542/peds.2019-2319. Epub 2020 Feb 19.

Abstract

When parents or guardians hope for a miracle for their child who is critically ill, ethical and professional challenges can arise. Often, although not always, the parent or guardian's hope for a miracle entails a request for continued life-sustaining interventions. Striking a balance between the pediatrician's conception of good medicine and the parent or guardian's authority requires a response that is sensitive, practical, and ethically sound. In this article, we recommend 3 cumulative steps that promote such a response. First, we recommend ways of exploring essential issues through open inquiry, interdisciplinary dialogue, and self-reflection. As part of this exploration, pediatricians will discover that parents or guardians often have unique ideas about what a miracle might be for their child. The second step includes analyzing this diversity and seeking understanding. We classify the hope for a miracle into 3 distinct categories: integrated, seeking, and adaptive. After the pediatrician has categorized the parent or guardian's hope, they can consider specific recommendations. We detail context-specific responses for each kind of hope. By attending to these nuances, not only will the parent or guardian's perspective be heard but also the pediatrician's recommendation can strike a balance between advocating for their conception of good medicine and respecting the parent or guardian's beliefs.

MeSH terms

  • Child
  • Communication
  • Critical Illness*
  • Hope*
  • Humans
  • Legal Guardians
  • Medical Futility / ethics
  • Parents*
  • Patient Care Team
  • Pediatricians
  • Process Assessment, Health Care*
  • Professional-Family Relations*
  • Terminally Ill*