Defining and implementing early palliative care for persons diagnosed with a life-limiting chronic illness: a scoping review protocol

JBI Evid Synth. 2020 Nov;18(11):2335-2341. doi: 10.11124/JBISRIR-D-19-00377.

Abstract

Objective: This review will explore definitions of early palliative care and describe how it has been implemented for those diagnosed with a life-limiting chronic illness.

Introduction: People with life-limiting chronic illnesses who receive palliative care interventions have increased quality of life, better symptom management, and are more likely to have advance care plans than patients who do not have life-limiting chronic illness. It is therefore best practice to encourage early identification of persons in need of palliative care services. However, there is uncertainty over what is considered to be "early palliative care" and this presents a barrier to evaluating associated outcomes.

Inclusion criteria: All literature that defines an early palliative care approach in adults (aged 18 years and older) with a life-limiting chronic illness in any health care setting will be included in this review. All countries and sociocultural settings will be included.

Methods: This scoping review will follow JBI methodology. A comprehensive search of academic and gray literature using MEDLINE (Ovid), CINAHL (EBSCO), Embase (Ovid), PsycINFO (Ovid), Web of Science Core Collection, Ovid Cochrane Library, and ProQuest (Health and Medicine and Sociology Collections) will be utilized. Articles will be screened for inclusion by two independent reviewers. Results will be extracted using a customized tool and summarized in a final report using a narrative synthesis presented in table form.

MeSH terms

  • Adolescent
  • Adult
  • Chronic Disease
  • Delivery of Health Care
  • Hospice and Palliative Care Nursing*
  • Humans
  • Palliative Care*
  • Quality of Life
  • Review Literature as Topic