Patient's experiences of suffering across the cancer trajectory: A qualitative systematic review protocol

J Adv Nurs. 2021 Feb;77(2):1037-1042. doi: 10.1111/jan.14628. Epub 2020 Nov 18.

Abstract

Aim: To identify, appraise and synthesize the available evidence from qualitative research exploring the suffering of patients with cancer during their illness trajectories.

Design: Protocol for a qualitative systematic review.

Data sources: The database will include PubMed, CINAHL and Psych Info were searched in May 2020.

Methods: The review protocol has been registered in International Prospective Register for Systematic Review (CRD42020165405). This review will systematically search qualitative research studies in databases from 1982-May 2020, with predetermined search terms. Searches are limited to studies in English. Two reviewers will independently appraise the methodological quality of the selected studies using the Joanna Briggs Institute Critical Appraisal Checklist for Qualitative Research. Disagreements can be settled through discussion which includes a third reviewer, if necessary. This review will use the meta-aggregative approach to analyze and synthesize data. A summary of findings from selected studies will be presented.

Discussion: Suffering is a complex dimension that included physical psychological, existential and social dimensions. This review will enable nurses to gain an in-depth understanding of suffering that not only worsens at the end of life that can deliver comprehensive care.

Impact: This review is designed to systematically identify and explore the suffering that patients with cancer experience during their illness trajectory. Often suffering is highlighted at the end of life phase. This review will synthesize the evidence of suffering from the beginning of the patient's diagnosis to the end of life. The results of this review provide evidence to support nursing developments in education and clinical practice so that understanding of cancer can be optimized. The findings of the proposed review will contribute as a basis for recommendations for future research regarding suffering.

目的: 在癌症患者患病期间,鉴别、评估和综合从探讨他们遭遇的定性研究中获得的证据。 设计: 定性系统评估方案 数据来源: 该数据库将包括文献服务检索系统、护理学数据库和2020年5月搜索的心理信息。 方法: 该评估方案已在国际前瞻性注册系统评估注册(CRD42020165405)。此评估方案将用预先确定的搜索词系统搜索数据库1982年至2020年5月期间的定性研究。搜索局限于英语研究。两位评估人将用乔安娜·布里格斯研究所用于定性研究的批判性评估清单独立评估所选研究的方法学质量。如有必要,分歧可以通过第三位评估人加入的讨论解决。本次评估将使用元聚合法来分析和综合数据。并提供所选研究结果摘要。 讨论: 遭受痛苦是一个复杂的维度,包括生理、心理、存在和社会的维度。本评估将使护士对患者的痛苦有更深刻的了解,患者的这种痛苦并不只会在临终前加剧,而是始终存在,因此,需要护士能够提供全面护理。 影响: 此次评估旨在系统地识别和探索癌症患者在患病过程中的痛苦遭遇。在生命阶段的最后,痛苦往往是最强烈的。本次评估将综合患者从诊断开始到生命结束所遭受痛苦的证据。本评估的结果为护理教育和临床实践的发展提供了证据,从而使人们对癌症的理解得到深化。提出的评估结果作为基础将有助于未来提出关于遭受痛苦研究的建议。.

Keywords: alienation; cancer; cancer trajectory; existential pain; helplessness; hopelessness; nurses; nursing; qualitative; suffering; systematic review.

MeSH terms

  • Humans
  • Neoplasms*
  • Qualitative Research
  • Systematic Reviews as Topic