End-of-Life Needs of Dying Patients and Their Families in Mainland China: A Systematic Review

Omega (Westport). 2023 Feb;86(3):1019-1045. doi: 10.1177/0030222821997340. Epub 2021 Feb 24.

Abstract

Objective: To map the current research status and understand existing findings regarding end-of-life care needs in Mainland China.

Method: First-hand, empirical studies on the needs of dying patients and/or their families in Mainland China were searched in Web of Science, Scopus, Proquest, Taylor & Francis Online and CNKI in December 2019. Findings were synthesized.

Results: A total of 33 (10 qualitative) studies were involved. Chinese dying patients and their families had physical, psychological, social, and spiritual needs and needs for knowledge and information. Prevalent needs of dying patients were mainly symptom control and decent look, being treated kindly by professional caregivers, family accompany, dignity, and comfortable environment. Families mainly need healthcare professionals to take good care of patients and wishes for information, knowledge, and facilities to help themselves become better caregivers.

Conclusions: Findings lay the foundation for effective and tailored services for Chinese clients and provided insights for future investigations.

Keywords: Mainland China; end-of-life care; family; need; patients.

Publication types

  • Systematic Review

MeSH terms

  • Caregivers / psychology
  • China
  • Death
  • Health Personnel
  • Hospice Care*
  • Humans
  • Terminal Care*