Insight into the content of and experiences with follow-up conversations with bereaved parents in paediatrics: A systematic review

Acta Paediatr. 2022 Apr;111(4):716-732. doi: 10.1111/apa.16248. Epub 2022 Feb 7.

Abstract

Aim: A follow-up conversation with bereaved parents is a relatively well-established intervention in paediatric clinical practice. Yet, the content and value of these conversations remain unclear. This review aims to provide insight into the content of follow-up conversations between bereaved parents and regular healthcare professionals (HCPs) in paediatrics and how parents and HCPs experience these conversations.

Methods: Systematic literature review using the methods PALETTE and PRISMA. The search was conducted in PubMed and CINAHL on 3 February 2021. The results were extracted and integrated using thematic analysis.

Results: Ten articles were included. This review revealed that follow-up conversations are built around three key elements: (1) gaining information, (2) receiving emotional support and (3) facilitating parents to provide feedback. In addition, this review showed that the vast majority of parents and HCPs experienced follow-up conversations as meaningful and beneficial for several reasons.

Conclusion: An understanding of what parents and HCPs value in follow-up conversations aids HCPs in conducting follow-up conversations and improves care for bereaved parents by enhancing the HCPs' understanding of parental needs.

Keywords: bereavement; end-of-life; follow-up; paediatrics; parents.

Publication types

  • Review
  • Systematic Review

MeSH terms

  • Bereavement*
  • Child
  • Communication
  • Follow-Up Studies
  • Humans
  • Parents / psychology
  • Pediatrics*