Current norms and practices in using a seizure diary for managing epilepsy: A scoping review

S Afr Fam Pract (2004). 2022 Sep 22;64(1):e1-e9. doi: 10.4102/safp.v64i1.5540.

Abstract

Background: Epilepsy is a chronic and debilitating condition affecting people of all ages in many nations. Healthcare practitioners look for effective ways to track patients' seizures, and a seizure diary is one of the methods used. This scoping review sought to identify current norms and practices for using seizure diaries to manage epilepsy.

Method: A scoping review was performed by screening relevant studies and identifying themes, categories and subcategories.

Results: A total of 1125 articles were identified from the database; 46 full-text articles were assessed for eligibility, of which 23 articles were selected. The majority (48%) of the studies were prospective studies. The majority (65%) of the articles were studies conducted in the United States. The themes identified were types of seizure diaries used in clinical practice, contents and structure of a standardised seizure diary, the use and efficacy of seizure diaries in medicine and challenges relating to using a seizure diary for patient management.

Conclusion: The study revealed that a seizure diary remains a relevant tool in managing epilepsy. The two forms of diaries in use are electronic and paper-based diaries. The high cost of data and the expensive devices required to access electronic diaries make it unsuitable in a resource-limited setting. Despite its disadvantages, imperfections and inadequacies, the paper-based diary is still relevant for managing patients with epilepsy in resource-limited settings.Contribution: This study reviewed the literature to find the current norms and practices in using seizure diaries. The benefits of the different formats were emphasised.

Keywords: articles; electronic diary; epilepsy; literature; paper-based seizure diary; scoping review; seizure diary; seizure frequency.

Publication types

  • Review
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Epilepsy* / diagnosis
  • Epilepsy* / therapy
  • Humans
  • Prospective Studies
  • Seizures* / therapy