Introduction: Data collection and its appropriate exploitation contributes to the detection of differences in needs or health outcomes between different sub-groups of the population. These enable improvements in knowledge, and then treatment and health policies.
Method: Our study is part of a prospective analysis of the health and social support system. Several issues were defined, linked to sex, gender and health relationships. One of them was "when and how the collection of sexed data about health could contribute to improve population health?". Particular issues were identified regarding LGBTI minorities. A narrative review was conducted, centered on this subject. The authors' own expertise and testimonials from users of the health system were also used.
Results: First, the analysis highlighted the lack of available data on the health of LGBTI people, and more broadly the lack of inclusiveness of sexed/gendered data collected from the general population. Then, three work leads were identified: (1) the tension between the benefits and the risks of having data on minorities (at the individual and collective level), (2) particular questions asked by Big data, and (3) the methodological difficulties to solve. For each of these work leads, the authors lay the foundations for a constructive reflection in order to encourage further work.
Discussion: Authors invite the actors, in concertation with the involved communities (and perhaps on their own initiative) to enter now into this reflection in order to move it forward and to promote health together.