Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations

Courtney Coleman; Olivia Fulton; Jeanette Boyd; Clare Williams; Zena Powell; Christopher E Brightling; Maarten van den Berge; Salman Siddiqui; Pippa Powell

doi:10.1183/20734735.0159-2022

Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations

Breathe (Sheff). 2023 Mar;19(1):220159. doi: 10.1183/20734735.0159-2022. Epub 2023 Apr 11.

Authors

Courtney Coleman¹, Olivia Fulton², Jeanette Boyd¹, Clare Williams¹, Zena Powell², Christopher E Brightling³, Maarten van den Berge⁴, Salman Siddiqui⁵, Pippa Powell¹

Affiliations

¹ European Lung Foundation, Sheffield, UK.
² Patient Advisory Group, European Lung Foundation, Sheffield, UK.
³ Department of Respiratory Sciences, University of Leicester, Leicester, UK.
⁴ Department of Pulmonary Diseases, University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands.
⁵ National Heart and Lung Institute, Imperial College London, London, UK.

Abstract

Patient and public involvement in research is increasingly considered a cornerstone of good research practice, and the research community recognises people with lived experience as valuable stakeholders within the research process. European Respiratory Society (ERS) strongly encourages patient input into its research programme and scientific activities, working in partnership with the European Lung Foundation (ELF) to facilitate this. Based on the ERS and ELF experience and best practice in the field of patient and public involvement, we developed a set of principles to which future ERS and ELF collaborations should adhere. These principles provide guidance on how to address key challenges when planning and conducting patient and public involvement in order to develop successful partnerships with patients and drive forward patient-centred research.