Understanding family-centered care in the NICU: a scoping review protocol

Maria E Franco Fuenmayor; Andrea Fawcett; Katherine E Schwartz; Susan Horner; Malathi Balasundaram; Barbara Lawlor Burke; Katherine A Bean; Laura N Russell; Elizabeth Simonton; Kerri Z Machut; Jessica T Fry

doi:10.11124/JBIES-23-00252

Understanding family-centered care in the NICU: a scoping review protocol

JBI Evid Synth. 2024 Feb 22. doi: 10.11124/JBIES-23-00252. Online ahead of print.

Authors

Maria E Franco Fuenmayor¹, Andrea Fawcett^{2

3}, Katherine E Schwartz⁴, Susan Horner^{2

5

6}, Malathi Balasundaram⁷, Barbara Lawlor Burke⁸, Katherine A Bean^{5

6}, Laura N Russell⁹, Elizabeth Simonton¹⁰, Kerri Z Machut^{5

6}, Jessica T Fry^{5

6}

Affiliations

¹ Department of Pediatrics, Division of Neonatology, John Sealy School of Medicine, University of Texas Medical Branch, Galveston, TX, USA.
² Lurie Children's Pediatric Research and Evidence Synthesis Centre (PRECIISE): A JBI Affiliated Group, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
³ Department of Clinical and Organizational Development, Lurie Children's Hospital of Chicago, Chicago, IL, USA.
⁴ Division of Neonatal-Perinatal Medicine, Northwell Health and Zucker School of Medicine at Hofstra/Northwell, Cohen Children's Medical Center, New Hyde Park, NY, USA.
⁵ Department of Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.
⁶ Division of Neonatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
⁷ Department of Pediatrics, Division of Neonatal-Perinatal Medicine, Stanford School of Medicine, Stanford, CA, USA.
⁸ Patient Family Experience Department, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
⁹ Department of Pediatrics, Division of Neonatology, Vanderbilt University Medical Center, Nashville, TN, USA.
¹⁰ ICU Baby, Co-Founder and CEO.

PMID: 38385497
DOI: 10.11124/JBIES-23-00252

Abstract

Objective: This scoping review aims to identify and categorize the definitions of neonatal intensive care unit (NICU) family-centered care (FCC) and its associated concepts. It also aims to identify and categorize the practices and interventions that comprise NICU FCC, and catalog the metrics used to evaluate NICU FCC.

Introduction: FCC has been identified as an important element of care for neonates and infants admitted to the NICU, and there is clear evidence that the incorporation of families in care improves clinical outcomes. However, FCC has been linked to numerous associated terms and concepts and lacks a unifying definition or framework, thus limiting the ability to categorize, prioritize, and identify practices and interventions to optimize both institutional approaches for individual centers and for the field at large.

Inclusion criteria: Studies that include or apply at least one FCC concept or its associated terms will be considered eligible for inclusion. Studies not related exclusively to the NICU will be excluded.

Methods: The review will follow the JBI methodology for scoping reviews and will be reported using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). Several electronic databases and sources of gray literature will be searched from 1992 to the present day. The review will include only full-text studies in English and will be independently screened by a minimum of 2 authors. Data will be extracted using a modified JBI data extraction tool and presented using narrative summaries; concept mapping; and categorization of practices, interventions, and metrics.