Aymé S - Search Results

1

Prevalence of vernal keratoconjunctivitis: a rare disease?

Bremond-Gignac D, Donadieu J, Leonardi A, Pouliquen P, Doan S, Chiambarretta F, Montan P, Milazzo S, Hoang-Xuan T, Baudouin C, Aymé S. Bremond-Gignac D, et al. Among authors: ayme s. Br J Ophthalmol. 2008 Aug;92(8):1097-102. doi: 10.1136/bjo.2007.117812. Epub 2008 Mar 20. Br J Ophthalmol. 2008. PMID: 18356259

2

Empowerment of patients: lessons from the rare diseases community.

Aymé S, Kole A, Groft S. Aymé S, et al. Lancet. 2008 Jun 14;371(9629):2048-51. doi: 10.1016/S0140-6736(08)60875-2. Lancet. 2008. PMID: 18555918 No abstract available.

3

The European Union Committee of Experts on Rare Diseases: three productive years at the service of the rare disease community.

Aymé S, Rodwell C. Aymé S, et al. Orphanet J Rare Dis. 2014 Feb 28;9:30. doi: 10.1186/1750-1172-9-30. Orphanet J Rare Dis. 2014. PMID: 24580800 Free PMC article.

4

CEMARA: a Web dynamic application within a N-tier architecture for rare diseases.

Messiaen C, Le Mignot L, Rath A, Richard JB, Dufour E, Ben Said M, Jais JP, Verloes A, Le Merrer M, Bodemer C, Baujat G, Gerard-Blanluet M, Bourdon-Lanoy E, Salomon R, Ayme S, Landais P. Messiaen C, et al. Among authors: ayme s. Stud Health Technol Inform. 2008;136:51-6. Stud Health Technol Inform. 2008. PMID: 18487707

5

[The RARE 2017 meeting from a health professional perspective].

Aymé S. Aymé S. Med Sci (Paris). 2018 May;34 Hors série n°1:6. doi: 10.1051/medsci/201834s103. Epub 2018 Jun 18. Med Sci (Paris). 2018. PMID: 29911541 Free article. French. No abstract available.

6

[Documentary research and self instruction. Rare diseases].

Cordier JF, Aymè S. Cordier JF, et al. Among authors: ayme s. Rev Prat. 2009 Sep 20;59(7):999-1003. Rev Prat. 2009. PMID: 19839476 French. No abstract available.

7

[Conclusions of RARE 2011 and prospects for RARE 2013].

Ayme S, Levy N, Schwebig A, Berthe J. Ayme S, et al. Presse Med. 2012 May;41 Suppl 1:S65-6. doi: 10.1016/j.lpm.2012.02.025. Epub 2012 Apr 4. Presse Med. 2012. PMID: 22480855 French. No abstract available.

8

[Orphanet, an information site on rare diseases].

Aymé S. Aymé S. Soins. 2003 Jan-Feb;(672):46-7. Soins. 2003. PMID: 12655825 French. No abstract available.

9

[Use of a directory of specialized services and guidance in the healthcare system: the example of the Orphanet database for rare diseases].

Nabarette H, Oziel D, Urbero B, Maxime N, Aymé S. Nabarette H, et al. Among authors: ayme s. Rev Epidemiol Sante Publique. 2006 Feb;54(1):41-53. doi: 10.1016/s0398-7620(06)76693-7. Rev Epidemiol Sante Publique. 2006. PMID: 16609636 French.

10

Conférence 1 - La France a eu un rôle moteur dans les maladies rares, peut-elle faire mieux ?

Aymé S. Aymé S. Med Sci (Paris). 2016 Apr;32 Spec No 1:12-3. doi: 10.1051/medsci/201632s104. Epub 2016 May 2. Med Sci (Paris). 2016. PMID: 27137855 Free article. French. No abstract available.

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