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Cross-cultural development and psychometric evaluation of a patient-reported health-related quality of life questionnaire for adults with haemophilia.
Rentz A, Flood E, Altisent C, Bullinger M, Klamroth R, Garrido RP, Scharrer I, Schramm W, Gorina E; Members of the HAEMO-QoL-A Steering Committee. Rentz A, et al. Among authors: bullinger m. Haemophilia. 2008 Sep;14(5):1023-34. doi: 10.1111/j.1365-2516.2008.01812.x. Epub 2008 Jul 28. Haemophilia. 2008. PMID: 18665853
Haemophilia care in Europe: the ESCHQoL study.
Schramm W, Gringeri A, Ljung R, Berger K, Crispin A, Bullinger M, Giangrande PL, Von Mackensen S, Mantovani LG, Nemes L, Serban M; ESCHQOL Study Group. Schramm W, et al. Among authors: bullinger m. Haemophilia. 2012 Sep;18(5):729-37. doi: 10.1111/j.1365-2516.2012.02847.x. Epub 2012 May 29. Haemophilia. 2012. PMID: 22639833
Outcome measures in haemophilia: more than just factor levels.
Bohn RL, Schramm W, Bullinger M, van den Berg M, Blanchette V. Bohn RL, et al. Among authors: bullinger m. Haemophilia. 2004 Mar;10 Suppl 1:2-8. doi: 10.1111/j.1355-0691.2004.00873.x. Haemophilia. 2004. PMID: 14987243 Review. No abstract available.
The economics of haemophilia prophylaxis: governmental and insurer perspectives. Proceedings of the Second International Prophylaxis Study Group (IPSG) symposium.
Feldman BM, Aledort L, Bullinger M, Delaney FM, Doria AS, Funk S, Giangrande P, Lundin B, Manco-Johnson M, Miners A, Scriba PC, Srivastava A, Schramm W, Blanchette VS; Second International Prophylaxis Study Group. Feldman BM, et al. Among authors: bullinger m. Haemophilia. 2007 Nov;13(6):745-9. doi: 10.1111/j.1365-2516.2007.01542.x. Epub 2007 Sep 10. Haemophilia. 2007. PMID: 17850325 No abstract available.
Why should we care about quality of life in persons with haemophilia?
Aledort L, Bullinger M, von Mackensen S, Wasserman J, Young NL, Globe D; Health Related Quality of Life Expert Working Group of the International Prophylaxis Study Group. Aledort L, et al. Among authors: bullinger m. Haemophilia. 2012 May;18(3):e154-7. doi: 10.1111/j.1365-2516.2012.02771.x. Epub 2012 Feb 22. Haemophilia. 2012. PMID: 22356125
336 results