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The OHRP and SUPPORT.
Wilfond BS, Magnus D, Antommaria AH, Appelbaum P, Aschner J, Barrington KJ, Beauchamp T, Boss RD, Burke W, Caplan AL, Capron AM, Cho M, Clayton EW, Cole FS, Darlow BA, Diekema D, Faden RR, Feudtner C, Fins JJ, Fost NC, Frader J, Hester DM, Janvier A, Joffe S, Kahn J, Kass NE, Kodish E, Lantos JD, McCullough L, McKinney R Jr, Meadow W, O'Rourke PP, Powderly KE, Pursley DM, Ross LF, Sayeed S, Sharp RR, Sugarman J, Tarnow-Mordi WO, Taylor H, Tomlinson T, Truog RD, Unguru YT, Weise KL, Woodrum D, Youngner S. Wilfond BS, et al. Among authors: joffe s. N Engl J Med. 2013 Jun 20;368(25):e36. doi: 10.1056/NEJMc1307008. Epub 2013 Jun 5. N Engl J Med. 2013. PMID: 23738513 No abstract available.
A Flawed Revision of the Common Rule.
Joffe S, Magnus DC. Joffe S, et al. Ann Intern Med. 2016 Jul 19;165(2):143-4. doi: 10.7326/M16-0119. Epub 2016 Apr 5. Ann Intern Med. 2016. PMID: 27043302 No abstract available.
Professionally Responsible Disclosure of Genomic Sequencing Results in Pediatric Practice.
McCullough LB, Brothers KB, Chung WK, Joffe S, Koenig BA, Wilfond B, Yu JH; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group. McCullough LB, et al. Among authors: joffe s. Pediatrics. 2015 Oct;136(4):e974-82. doi: 10.1542/peds.2015-0624. Epub 2015 Sep 14. Pediatrics. 2015. PMID: 26371191 Free PMC article.
Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.
Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kauffman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS; Clinical Sequencing Exploratory Research (CSER) Consortium Informed Consent and Governance Working Group. Yu JH, et al. Among authors: joffe s. Per Med. 2019 Jul;16(4):325-333. doi: 10.2217/pme-2018-0076. Epub 2019 Jul 17. Per Med. 2019. PMID: 31313633 Free PMC article.
430 results