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The OHRP and SUPPORT.
Wilfond BS, Magnus D, Antommaria AH, Appelbaum P, Aschner J, Barrington KJ, Beauchamp T, Boss RD, Burke W, Caplan AL, Capron AM, Cho M, Clayton EW, Cole FS, Darlow BA, Diekema D, Faden RR, Feudtner C, Fins JJ, Fost NC, Frader J, Hester DM, Janvier A, Joffe S, Kahn J, Kass NE, Kodish E, Lantos JD, McCullough L, McKinney R Jr, Meadow W, O'Rourke PP, Powderly KE, Pursley DM, Ross LF, Sayeed S, Sharp RR, Sugarman J, Tarnow-Mordi WO, Taylor H, Tomlinson T, Truog RD, Unguru YT, Weise KL, Woodrum D, Youngner S. Wilfond BS, et al. N Engl J Med. 2013 Jun 20;368(25):e36. doi: 10.1056/NEJMc1307008. Epub 2013 Jun 5. N Engl J Med. 2013. PMID: 23738513 No abstract available.
Returning incidentally discovered Hepatitis C RNA-seq results to COPDGene study participants.
Silverman EK, Kim AY, Make BJ, Regan EA, Morrow JD, Hersh CP, O'Brien J, Crapo JD, Hansel NN, Criner G, Flenaugh EL, Conrad D, Casaburi R, Bowler RP, Hanania NA, Barr RG, Bhatt SP, Sciurba FC, Anzueto A, Han MK, McEvoy CE, Comellas AP, DeMeo DL, Rosiello R, Curtis JL, Uchida T, Wilson C, O'Rourke PP. Silverman EK, et al. Among authors: o rourke pp. NPJ Genom Med. 2023 Oct 31;8(1):36. doi: 10.1038/s41525-023-00379-4. NPJ Genom Med. 2023. PMID: 37903807 Free PMC article.
Returning Individual Research Results from Digital Phenotyping in Psychiatry.
Shen FX, Baum ML, Martinez-Martin N, Miner AS, Abraham M, Brownstein CA, Cortez N, Evans BJ, Germine LT, Glahn DC, Grady C, Holm IA, Hurley EA, Kimble S, Lázaro-Muñoz G, Leary K, Marks M, Monette PJ, Onnela JP, O'Rourke PP, Rauch SL, Shachar C, Sen S, Vahia I, Vassy JL, Baker JT, Bierer BE, Silverman BC. Shen FX, et al. Among authors: o rourke pp. Am J Bioeth. 2024 Feb;24(2):69-90. doi: 10.1080/15265161.2023.2180109. Epub 2023 May 8. Am J Bioeth. 2024. PMID: 37155651 Free PMC article.
Clarifying the Ethics and Oversight of Chimeric Research.
Johnston J, Hyun I, Neuhaus CP, Maschke KJ, Marshall P, Craig KP, Matthews MM, Drolet K, Greely HT, Hill LR, Hinterberger A, Hurley EA, Kesterson R, Kimmelman J, King NMP, Lopes MJ, O'Rourke PP, Parent B, Peckman S, Piotrowska M, Schwarz M, Sebo J, Stodgell C, Streiffer R, Wilkerson A. Johnston J, et al. Among authors: o rourke pp. Hastings Cent Rep. 2022 Nov;52 Suppl 2(Suppl 2):S2-S23. doi: 10.1002/hast.1427. Hastings Cent Rep. 2022. PMID: 36484509 Free PMC article.
Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.
Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS. Wolf SM, et al. Among authors: o rourke pp. J Law Med Ethics. 2018 Mar;46(1):87-109. doi: 10.1177/1073110518766024. Epub 2018 Mar 27. J Law Med Ethics. 2018. PMID: 30008546 Free PMC article. No abstract available.
66 results