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Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group.
Gray SW, Martins Y, Feuerman LZ, Bernhardt BA, Biesecker BB, Christensen KD, Joffe S, Rini C, Veenstra D, McGuire AL; CSER Consortium Outcomes and Measures Working Group. Gray SW, et al. Among authors: mcguire al. Genet Med. 2014 Oct;16(10):727-35. doi: 10.1038/gim.2014.26. Epub 2014 Mar 13. Genet Med. 2014. PMID: 24625446 Free PMC article. Review.
Consent: informed, simple, implied and presumed.
McCullough LB, McGuire AL, Whitney SN. McCullough LB, et al. Among authors: mcguire al. Am J Bioeth. 2007 Dec;7(12):49-50; discussion W3-4. doi: 10.1080/15265160701710329. Am J Bioeth. 2007. PMID: 18098025 No abstract available.
DNA data sharing: research participants' perspectives.
McGuire AL, Hamilton JA, Lunstroth R, McCullough LB, Goldman A. McGuire AL, et al. Genet Med. 2008 Jan;10(1):46-53. doi: 10.1097/GIM.0b013e31815f1e00. Genet Med. 2008. PMID: 18197056 Free PMC article.
Principal investigator views of the IRB system.
Whitney SN, Alcser K, Schneider C, McCullough LB, McGuire AL, Volk RJ. Whitney SN, et al. Among authors: mcguire al. Int J Med Sci. 2008 Apr 2;5(2):68-72. doi: 10.7150/ijms.5.68. Int J Med Sci. 2008. PMID: 18392146 Free PMC article.
Beyond breaking bad news: the roles of hope and hopefulness.
Whitney SN, McCullough LB, Frugé E, McGuire AL, Volk RJ. Whitney SN, et al. Among authors: mcguire al. Cancer. 2008 Jul 15;113(2):442-5. doi: 10.1002/cncr.23588. Cancer. 2008. PMID: 18484591 Free article.
Beyond shared decision making: an expanded typology of medical decisions.
Whitney SN, Holmes-Rovner M, Brody H, Schneider C, McCullough LB, Volk RJ, McGuire AL. Whitney SN, et al. Among authors: mcguire al. Med Decis Making. 2008 Sep-Oct;28(5):699-705. doi: 10.1177/0272989X08318465. Epub 2008 Jun 12. Med Decis Making. 2008. PMID: 18556639
Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.
Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL; Consent and Community Consultation Working Group of the eMERGE Consortium. Clayton EW, et al. Among authors: mcguire al. Genet Med. 2010 Oct;12(10):616-20. doi: 10.1097/GIM.0b013e3181efdbd0. Genet Med. 2010. PMID: 20733502 Free PMC article. No abstract available.
282 results