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Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS.
van Hoorn ES, Teela L, Kuijlaars IAR, Fischer K, Gouw SC, Cnossen MH, Haverman L; for SYMPHONY consortium and Dutch research group for PROMIS implementation in inherited bleeding disorders. van Hoorn ES, et al. Among authors: kuijlaars iar. Haemophilia. 2023 Jan;29(1):357-361. doi: 10.1111/hae.14694. Epub 2022 Nov 17. Haemophilia. 2023. PMID: 36395776 No abstract available.
Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance.
Kuijlaars IAR, Teela L, van Vulpen LFD, Timmer MA, Coppens M, Gouw SC, Peters M, Kruip MJHA, Cnossen MH, Muis JJ, van Hoorn ES, Haverman L, Fischer K. Kuijlaars IAR, et al. Res Pract Thromb Haemost. 2021 Nov 21;5(8):e12621. doi: 10.1002/rth2.12621. eCollection 2021 Dec. Res Pract Thromb Haemost. 2021. PMID: 34849449 Free PMC article.
Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS.
Kuijlaars IAR, van der Net J, Feldman BM, Aspdahl M, Bladen M, de Boer W, Cuesta-Barriuso R, Matlary RED, Funk SM, Hilliard P, John JA, Kempton CL, de Kleijn P, Manco-Johnson M, Petrini P, Poonnoose P, St-Louis J, Thomas S, Timmer MA, Trakymiene SS, van Vlimmeren L, Fischer K. Kuijlaars IAR, et al. Haemophilia. 2020 Nov;26(6):1072-1080. doi: 10.1111/hae.14180. Epub 2020 Oct 15. Haemophilia. 2020. PMID: 33058441 Free PMC article.
14 results