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Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS.
Haemophilia. 2023 Jan;29(1):357-361. doi: 10.1111/hae.14694. Epub 2022 Nov 17.
Haemophilia. 2023.
PMID: 36395776
No abstract available.
Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance.
Kuijlaars IAR, Teela L, van Vulpen LFD, Timmer MA, Coppens M, Gouw SC, Peters M, Kruip MJHA, Cnossen MH, Muis JJ, van Hoorn ES, Haverman L, Fischer K.
Kuijlaars IAR, et al. Among authors: van hoorn es.
Res Pract Thromb Haemost. 2021 Nov 21;5(8):e12621. doi: 10.1002/rth2.12621. eCollection 2021 Dec.
Res Pract Thromb Haemost. 2021.
PMID: 34849449
Free PMC article.
Item in Clipboard
Patient-reported outcomes in autosomal inherited bleeding disorders: A systematic literature review.
van Hoorn ES, Houwing ME, Al Arashi W, Leebeek FWG, Hazelzet JA, Gouw SC, Schutgens REG, Schols SEM, Lingsma HF, Cnossen MH; SYMPHONY consortium.
van Hoorn ES, et al.
Haemophilia. 2022 Mar;28(2):197-214. doi: 10.1111/hae.14492. Epub 2022 Jan 18.
Haemophilia. 2022.
PMID: 35040234
Free PMC article.
Review.
Item in Clipboard
Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banks.
Teela L, Luijten MAJ, Kuijlaars IAR, van Gastel TCM, van Hoorn ES, Gouw SC, Fijnvandraat KCJ, Fischer K, Cnossen MH, Andeweg S, van der Velden-van 't Hoff C, Liem C, Jansen-Zijlstra ME, Peters M, Haverman L.
Teela L, et al. Among authors: van hoorn es.
Res Pract Thromb Haemost. 2023 Aug 2;7(6):102159. doi: 10.1016/j.rpth.2023.102159. eCollection 2023 Aug.
Res Pract Thromb Haemost. 2023.
PMID: 37753226
Free PMC article.
Item in Clipboard
Patient-relevant health outcomes for von Willebrand disease, platelet function disorders, and rare bleeding disorders: a Delphi study.
van Hoorn ES, Lingsma HF, Cnossen MH, Gouw SC.
van Hoorn ES, et al.
Res Pract Thromb Haemost. 2023 Sep 14;7(7):102201. doi: 10.1016/j.rpth.2023.102201. eCollection 2023 Oct.
Res Pract Thromb Haemost. 2023.
PMID: 37854454
Free PMC article.
Item in Clipboard
Value-Based Integrated Care: A Systematic Literature Review.
van Hoorn ES, Ye L, van Leeuwen N, Raat H, Lingsma HF.
van Hoorn ES, et al.
Int J Health Policy Manag. 2024;13:8038. doi: 10.34172/ijhpm.2024.8038. Epub 2024 Feb 19.
Int J Health Policy Manag. 2024.
PMID: 38618830
Free PMC article.
Item in Clipboard
The ethics of gene therapy for hemophilia: a narrative review.
Baas L, van der Graaf R, van Hoorn ES, Bredenoord AL, Meijer K; SYMPHONY consortium.
Baas L, et al. Among authors: van hoorn es.
J Thromb Haemost. 2023 Mar;21(3):413-420. doi: 10.1016/j.jtha.2022.12.027. Epub 2023 Jan 2.
J Thromb Haemost. 2023.
PMID: 36696181
Free article.
Review.
Item in Clipboard
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