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ERN GENTURIS tumour surveillance guidelines for individuals with neurofibromatosis type 1.
Carton C, Evans DG, Blanco I, Friedrich RE, Ferner RE, Farschtschi S, Salvador H, Azizi AA, Mautner V, Röhl C, Peltonen S, Stivaros S, Legius E, Oostenbrink R; ERN GENTURIS NF1 Tumour Management Guideline Group. Carton C, et al. Among authors: rohl c. EClinicalMedicine. 2023 Jan 13;56:101818. doi: 10.1016/j.eclinm.2022.101818. eCollection 2023 Feb. EClinicalMedicine. 2023. PMID: 36684394 Free PMC article. Review.
Current whole-body MRI applications in the neurofibromatoses: NF1, NF2, and schwannomatosis.
Ahlawat S, Fayad LM, Khan MS, Bredella MA, Harris GJ, Evans DG, Farschtschi S, Jacobs MA, Chhabra A, Salamon JM, Wenzel R, Mautner VF, Dombi E, Cai W, Plotkin SR, Blakeley JO; Whole Body MRI Committee for the REiNS International Collaboration; REiNS International Collaboration Members 2016. Ahlawat S, et al. Neurology. 2016 Aug 16;87(7 Suppl 1):S31-9. doi: 10.1212/WNL.0000000000002929. Neurology. 2016. PMID: 27527647 Free PMC article.
Perspective of Adults With Neurofibromatosis 1 and Cutaneous Neurofibromas: Implications for Clinical Trials.
Cannon A, Pichard DC, Wolters PL, Adsit S, Erickson G, Lessing AJ, Li P, Narmore W, Röhl C, Rosser T, Widemann BC, Blakeley JO, Plotkin SR; REiNS International Collaboration. Cannon A, et al. Among authors: rohl c. Neurology. 2021 Aug 17;97(7 Suppl 1):S15-S24. doi: 10.1212/WNL.0000000000012425. Epub 2021 Jul 6. Neurology. 2021. PMID: 34230202 Free PMC article.
Impact of the coronavirus pandemic on mental health and health care in adults with neurofibromatosis: Patient perspectives from an online survey.
Wolters PL, Reda S, Martin S, Al Ghriwati N, Baker M, Berg D, Erickson G, Franklin B, Merker VL, Oberlander B, Reeve S, Rohl C, Rosser T, Toledo-Tamula MA, Vranceanu AM. Wolters PL, et al. Among authors: rohl c. Am J Med Genet A. 2022 Jan;188(1):71-82. doi: 10.1002/ajmg.a.62490. Epub 2021 Sep 18. Am J Med Genet A. 2022. PMID: 34536052 Free PMC article.
Asking those who know their needs best: A framework for active engagement and involvement of childhood cancer survivors and parents in the process of psychosocial research-A workshop report.
Weiler-Wichtl LJ, Schneider C, Gsell H, Maletzky AM, Kienesberger A, Röhl C, Bocolli A, Gojo J, Hansl R, Zettl A, Hopfgartner M, Leiss U. Weiler-Wichtl LJ, et al. Among authors: rohl c. Cancer Rep (Hoboken). 2024 May;7(5):e2071. doi: 10.1002/cnr2.2071. Cancer Rep (Hoboken). 2024. PMID: 38767531 Free PMC article.
Recommendations for assessing appearance concerns related to plexiform and cutaneous neurofibromas in neurofibromatosis 1 clinical trials.
Merker VL, Thompson HL, Wolters PL, Buono FD, Hingtgen CM, Rosser T, Barton B, Barnett C, Smith T, Haberkamp D, McManus ML, Baldwin A, Moss IP, Röhl C, Martin S. Merker VL, et al. Among authors: rohl c. Clin Trials. 2024 Feb;21(1):6-17. doi: 10.1177/17407745231205577. Epub 2023 Dec 23. Clin Trials. 2024. PMID: 38140900 Free PMC article.
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