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Blending citizen science with natural language processing and machine learning: Understanding the experience of living with multiple sclerosis.
Haag C, Steinemann N, Chiavi D, Kamm CP, Sieber C, Manjaly ZM, Horváth G, Ajdacic-Gross V, Puhan MA, von Wyl V. Haag C, et al. Among authors: steinemann n. PLOS Digit Health. 2023 Aug 2;2(8):e0000305. doi: 10.1371/journal.pdig.0000305. eCollection 2023 Aug. PLOS Digit Health. 2023. PMID: 37531365 Free PMC article.
A digitally facilitated citizen-science driven approach accelerates participant recruitment and increases study population diversity.
Puhan MA, Steinemann N, Kamm CP, Müller S, Kuhle J, Kurmann R, Calabrese P, Kesselring J, von Wyl V, Swiss Multiple Sclerosis Registry Smsr. Puhan MA, et al. Among authors: steinemann n. Swiss Med Wkly. 2018 May 16;148:w14623. doi: 10.4414/smw.2018.14623. eCollection 2018. Swiss Med Wkly. 2018. PMID: 29767828 Free article.
The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research.
Steinemann N, Kuhle J, Calabrese P, Kesselring J, Disanto G, Merkler D, Pot C, Ajdacic-Gross V, Rodgers S, Puhan MA, von Wyl V; Swiss Multiple Sclerosis Registry. Steinemann N, et al. BMC Neurol. 2018 Aug 13;18(1):111. doi: 10.1186/s12883-018-1118-0. BMC Neurol. 2018. PMID: 30103695 Free PMC article.
Factors associated with time from first-symptoms to diagnosis and treatment initiation of Multiple Sclerosis in Switzerland.
Kaufmann M, Kuhle J, Puhan MA, Kamm CP, Chan A, Salmen A, Kesselring J, Calabrese P, Gobbi C, Pot C, Steinemann N, Rodgers S, von Wyl V; Swiss Multiple Sclerosis Registry (SMSR). Kaufmann M, et al. Among authors: steinemann n. Mult Scler J Exp Transl Clin. 2018 Dec 6;4(4):2055217318814562. doi: 10.1177/2055217318814562. eCollection 2018 Oct-Dec. Mult Scler J Exp Transl Clin. 2018. PMID: 30559972 Free PMC article.
A step beyond the hygiene hypothesis-immune-mediated classes determined in a population-based study.
Ajdacic-Gross V, Mutsch M, Rodgers S, Tesic A, Müller M, Seifritz E, Wagner EN, von Känel R, Landolt MA, Steinemann N, von Wyl V, Castelao E, Strippoli MF, Glaus J, Vandeleur C, Marques-Vidal PM, Vollenweider P, Preisig M. Ajdacic-Gross V, et al. Among authors: steinemann n. BMC Med. 2019 Apr 9;17(1):75. doi: 10.1186/s12916-019-1311-z. BMC Med. 2019. PMID: 30961604 Free PMC article.
How do patients enter the healthcare system after the first onset of multiple sclerosis symptoms? The influence of setting and physician specialty on speed of diagnosis.
Barin L, Kamm CP, Salmen A, Dressel H, Calabrese P, Pot C, Schippling S, Gobbi C, Müller S, Chan A, Rodgers S, Kaufmann M, Ajdacic-Gross V, Steinemann N, Kesselring J, Puhan MA, von Wyl V; Swiss Multiple Sclerosis Registry. Barin L, et al. Among authors: steinemann n. Mult Scler. 2020 Apr;26(4):489-500. doi: 10.1177/1352458518823955. Epub 2019 Jan 18. Mult Scler. 2020. PMID: 31456464 Free PMC article.
60/30: 60% of the Morbidity-Associated Multiple Sclerosis Disease Burden Comes From the 30% of Persons With Higher Impairments.
Kaufmann M, Puhan MA, Salmen A, Kamm CP, Manjaly ZM, Calabrese P, Schippling S, Müller S, Kuhle J, Pot C, Gobbi C, Steinemann N, von Wyl V; Swiss Multiple Sclerosis Registry (SMSR). Kaufmann M, et al. Among authors: steinemann n. Front Neurol. 2020 Mar 6;11:156. doi: 10.3389/fneur.2020.00156. eCollection 2020. Front Neurol. 2020. PMID: 32210908 Free PMC article.
Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study.
Lehmann AI, Rodgers S, Kamm CP, Mettler M, Steinemann N, Ajdacic-Gross V, Kaufmann M, Kesselring J, Calabrese P, Salmen A, Gobbi C, Zecca C, Bauer GF, von Wyl V. Lehmann AI, et al. Among authors: steinemann n. J Neurol. 2020 Oct;267(10):3069-3082. doi: 10.1007/s00415-020-09973-3. Epub 2020 Jun 11. J Neurol. 2020. PMID: 32529580 Free PMC article.
24 results