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Cancer survivors not participating in observational patient-reported outcome studies have a lower survival compared to participants: the population-based PROFILES registry.
de Rooij BH, Ezendam NPM, Mols F, Vissers PAJ, Thong MSY, Vlooswijk CCP, Oerlemans S, Husson O, Horevoorts NJE, van de Poll-Franse LV. de Rooij BH, et al. Qual Life Res. 2018 Dec;27(12):3313-3324. doi: 10.1007/s11136-018-1979-0. Epub 2018 Aug 30. Qual Life Res. 2018. PMID: 30167937 Free PMC article.
Unraveling the Heterogeneity of Sarcoma Survivors' Health-Related Quality of Life Regarding Primary Sarcoma Location: Results from the SURVSARC Study.
van Eck I, den Hollander D, Desar IME, Soomers VLMN, van de Sande MAJ, de Haan JJ, Verhoef C, Vriens IJH, Bonenkamp JJ, van der Graaf WTA, van Houdt WJ, Husson O. van Eck I, et al. Cancers (Basel). 2020 Oct 22;12(11):3083. doi: 10.3390/cancers12113083. Cancers (Basel). 2020. PMID: 33105807 Free PMC article.
The Perceived Impact of Length of the Diagnostic Pathway Is Associated with Health-Related Quality of Life of Sarcoma Survivors: Results from the Dutch Nationwide SURVSARC Study.
Soomers VLMN, Desar IME, van de Poll-Franse LV, van de Sande MAJ, de Haan JJ, Verhoef C, Vriens IJH, van Houdt WJ, Bonenkamp JJ, van der Graaf WTA, Husson O. Soomers VLMN, et al. Cancers (Basel). 2020 Jul 28;12(8):2088. doi: 10.3390/cancers12082088. Cancers (Basel). 2020. PMID: 32731426 Free PMC article.