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The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research.
Steinemann N, Kuhle J, Calabrese P, Kesselring J, Disanto G, Merkler D, Pot C, Ajdacic-Gross V, Rodgers S, Puhan MA, von Wyl V; Swiss Multiple Sclerosis Registry. Steinemann N, et al. BMC Neurol. 2018 Aug 13;18(1):111. doi: 10.1186/s12883-018-1118-0. BMC Neurol. 2018. PMID: 30103695 Free PMC article.
Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study.
Kamm CP, Barin L, Gobbi C, Pot C, Calabrese P, Salmen A, Achtnichts L, Kesselring J, Puhan MA, von Wyl V; Swiss Multiple Sclerosis Registry (SMSR). Kamm CP, et al. Among authors: puhan ma. J Neurol. 2020 Jan;267(1):153-161. doi: 10.1007/s00415-019-09563-y. Epub 2019 Oct 8. J Neurol. 2020. PMID: 31595377 Free article. Clinical Trial.
60/30: 60% of the Morbidity-Associated Multiple Sclerosis Disease Burden Comes From the 30% of Persons With Higher Impairments.
Kaufmann M, Puhan MA, Salmen A, Kamm CP, Manjaly ZM, Calabrese P, Schippling S, Müller S, Kuhle J, Pot C, Gobbi C, Steinemann N, von Wyl V; Swiss Multiple Sclerosis Registry (SMSR). Kaufmann M, et al. Among authors: puhan ma. Front Neurol. 2020 Mar 6;11:156. doi: 10.3389/fneur.2020.00156. eCollection 2020. Front Neurol. 2020. PMID: 32210908 Free PMC article.
Development and validation of the self-reported disability status scale (SRDSS) to estimate EDSS-categories.
Kaufmann M, Salmen A, Barin L, Puhan MA, Calabrese P, Kamm CP, Gobbi C, Kuhle J, Manjaly ZM, Ajdacic-Gross V, Schafroth S, Bottignole B, Ammann S, Zecca C, D'Souza M, von Wyl V; Swiss Multiple Sclerosis Registry (SMSR). Kaufmann M, et al. Among authors: puhan ma. Mult Scler Relat Disord. 2020 Jul;42:102148. doi: 10.1016/j.msard.2020.102148. Epub 2020 Apr 28. Mult Scler Relat Disord. 2020. PMID: 32371376 Free article.
517 results