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Should doctors have a legal duty to warn relatives of their genetic risks?
Lancet. 2019 Dec 14;394(10215):2133-2135. doi: 10.1016/S0140-6736(19)32941-1. Epub 2019 Nov 26.
Lancet. 2019.
PMID: 31784025
No abstract available.
Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data.
Middleton A, Milne R, Howard H, Niemiec E, Robarts L, Critchley C, Nicol D, Prainsack B, Atutornu J, Vears DF, Smith J, Steed C, Bevan P, Scott ER, Bobe J, Goodhand P, Kleiderman E, Thorogood A, Morley KI; Participant Values Work Stream of the Global Alliance for Genomics and Health.
Middleton A, et al. Among authors: robarts l.
Eur J Hum Genet. 2020 Apr;28(4):424-434. doi: 10.1038/s41431-019-0550-y. Epub 2019 Nov 29.
Eur J Hum Genet. 2020.
PMID: 31784701
Free PMC article.
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Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Middleton A, Milne R, Almarri MA, Anwer S, Atutornu J, Baranova EE, Bevan P, Cerezo M, Cong Y, Critchley C, Fernow J, Goodhand P, Hasan Q, Hibino A, Houeland G, Howard HC, Hussain SZ, Malmgren CI, Izhevskaya VL, Jędrzejak A, Jinhong C, Kimura M, Kleiderman E, Leach B, Liu K, Mascalzoni D, Mendes Á, Minari J, Wang N, Nicol D, Niemiec E, Patch C, Pollard J, Prainsack B, Rivière M, Robarts L, Roberts J, Romano V, Sheerah HA, Smith J, Soulier A, Steed C, Stefànsdóttir V, Tandre C, Thorogood A, Voigt TH, West AV, Yoshizawa G, Morley KI.
Middleton A, et al. Among authors: robarts l.
Am J Hum Genet. 2020 Oct 1;107(4):743-752. doi: 10.1016/j.ajhg.2020.08.023. Epub 2020 Sep 17.
Am J Hum Genet. 2020.
PMID: 32946764
Free PMC article.
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Attitudes of Costa Rican individuals towards donation of personal genetic data for research.
Chavarria-Soley G, Francis-Cartin F, Jimenez-Gonzalez F, Ávila-Aguirre A, Castro-Gomez MJ, Robarts L, Middleton A, Raventós H.
Chavarria-Soley G, et al. Among authors: robarts l.
Per Med. 2021 Mar;18(2):141-152. doi: 10.2217/pme-2020-0113. Epub 2021 Feb 12.
Per Med. 2021.
PMID: 33576268
Free PMC article.
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Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries.
Milne R, Morley KI, Almarri MA, Anwer S, Atutornu J, Baranova EE, Bevan P, Cerezo M, Cong Y, Costa A, Critchley C, Fernow J, Goodhand P, Hasan Q, Hibino A, Houeland G, Howard HC, Hussain SZ, Malmgren CI, Izhevskaya VL, Jędrzejak A, Jinhong C, Kimura M, Kleiderman E, Leach B, Liu K, Mascalzoni D, Mendes Á, Minari J, Nicol D, Niemiec E, Patch C, Pollard J, Prainsack B, Rivière M, Robarts L, Roberts J, Romano V, Sheerah HA, Smith J, Soulier A, Steed C, Stefànsdóttir V, Tandre C, Thorogood A, Voigt TH, Wang N, West AV, Yoshizawa G, Middleton A.
Milne R, et al. Among authors: robarts l.
Genome Med. 2021 May 25;13(1):92. doi: 10.1186/s13073-021-00903-0.
Genome Med. 2021.
PMID: 34034801
Free PMC article.
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Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries.
Milne R, Morley KI, Almarri MA, Atutornu J, Baranova EE, Bevan P, Cerezo M, Cong Y, Costa A, Feijao C, de Freitas C, Fernow J, Goodhand P, Hasan Q, Hibino A, Houeland G, Howard HC, Hussain Sheikh Z, Malmgren CI, Izhevskaya VL, Jędrzejak A, Jinhong C, Kimura M, Kleiderman E, Liu K, Mascalzoni D, Mendes Á, Minari J, Nicol D, Niemiec E, Patch C, Prainsack B, Rivière M, Robarts L, Roberts J, Romano V, Sheerah HA, Smith J, Soulier A, Steed C, Stefànsdóttir V, Tandre C, Thorogood A, Voigt TH, Wang N, Yoshizawa G, Middleton A.
Milne R, et al. Among authors: robarts l.
Genet Med. 2022 May;24(5):1120-1129. doi: 10.1016/j.gim.2022.01.002. Epub 2022 Feb 3.
Genet Med. 2022.
PMID: 35125311
Free article.
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The legacy of language: What we say, and what people hear, when we talk about genomics.
Middleton A, Costa A, Milne R, Patch C, Robarts L, Tomlin B, Danson M, Henriques S, Atutornu J, Aidid U, Boraschi D, Galloway C, Yazmir K, Pettit S, Harcourt T, Connolly A, Li A, Cala J, Lake S, Borra J, Parry V.
Middleton A, et al. Among authors: robarts l.
HGG Adv. 2023 Aug 31;4(4):100231. doi: 10.1016/j.xhgg.2023.100231. eCollection 2023 Oct 12.
HGG Adv. 2023.
PMID: 37869565
Free PMC article.
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Public engagement with genomics.
Middleton A, Adams A, Aidid H, Atutornu J, Boraschi D, Borra J, Bircan T, Burch C, Costa A, Dickinson A, Enticknap A, Galloway C, Gale F, Garlick E, Haydon E, Henriques S, Mitchell M, Milne R, Monaghan J, Morley KI, Muella Santos M, Olivares Boldu L, Olumogba F, Orviss K, Parry V, Patch C, Robarts L, Shingles S, Smidt C, Tomlin B, Parkinson S.
Middleton A, et al. Among authors: robarts l.
Wellcome Open Res. 2023 Sep 18;8:310. doi: 10.12688/wellcomeopenres.19473.2. eCollection 2023.
Wellcome Open Res. 2023.
PMID: 37928209
Free PMC article.
Review.
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